2023-10-09T16:15:53-04:00 2022-12-31 474306215 Mullins PC 7625 Wisconsin Avenue Bethesda MD 20814 990 2022-01-01 851278444 Institute for Exceptional Care INST 2000 Pennsylvania Avenue STE 500 Washington DC 20006 Hoangmai Pham President 2028439260 2023-10-10 true Hoangmai Pham XXX-XX-XXXX John Mullins P01429307 2027706371 2023-10-10 0 00 AAL1 IAL1 2022 2023-04-26 12:10:37Z X Hoangmai Pham 2236963 false X www.ie-care.org X 2020 DC Transforming healthcare for people with intellectual and developmental disabilities, so they can thrive. 17 17 12 70 0 0 498421 2236878 0 73 85 73 0 498567 2236963 0 0 577897 0 236425 409727 476106 409727 1054003 88840 1182960 265899 1552216 70263 173620 195636 1378596 Transforming healthcare for people with intellectual and developmental disabilities, so they can thrive. false false 645232 Thought Leadership: Institute for Exceptional Care (IEC) chaired the Planning Committee for a public workshop of the National Academy of Science, Engineering, and Medicine, on the policy, clinical, and business actions needed to build an integrated system of care for people with intellectual and/or developmental disabilities (I/DD). The workshop featured over 30 stakeholders and experts in the field, addressing the critical topics of better coordination of support services across clinical and home- and community-based sectors, improving the cultural and technical preparedness of the general clinical workforce to care for people with I/DD, and improving financing and payment to sustain effective care models. IEC also:Led the design of all disability-related discussions at a national health equity conference with over 9,000 attendees from across the fields of clinical care and health policy. Produced an analysis of federal policy options to improve mental health outcomes for people with I/DD.Co-chaired other workshops and publications from the National Academy of Medicine on policy and programmatic options for improving the health of communities, particularly for vulnerable populations including people with I/DD. Research and Analysis:IEC sponsored three critical analyses to support the design of better care systems for people with I/DD: (1) Case studies of financing and payment innovations across the United States; (2) reviews of the strengths and weaknesses of current approaches to coordination between clinical and non-clinical service sectors, identification of 13 key coordination functions, and the design of an alternative framework for coordination that specifies which stakeholders should be responsible for which functions; and (3) review of current methods for risk stratification and producing a conceptual framework for predicting the types and levels of clinical and non-clinical services that a person with I/DD will need, in order to support better budgeting, financing, and payment. Education:IEC sponsored a webinar for a community of students, alumni, and staff at an independent residential school for children with I/DD, on the elements of neurodiverse friendly healthcare. The webinar addressed important physical accommodations in clinical practices, the potential and challenges of telehealth, and suggestions for how people with I/DD and caregivers can advocate for better care. 645232 true true false false false false false false false false false false false false false true true false false false false false false false false false false false false true false false false false false false false false false false false false false false false false false true 7 0 true 12 true false false false false false false false false false false false false X 17 17 false false false false false false false true true false false true true true false true true true true false CA CT DC FL IL MA MD NJ NV VA X Institute for Exceptional Care 2028439260 2000 Pennsylvania Avenue Suite 500 Washington DC 20006 May-Lynn Andersen Director of Partnerships 40.00 0.00 X 146769 0 13017 John Stowe Chief Operating Officer 30.00 0.00 X X 107813 0 5786 Hoangmai Pham President 20.00 0.00 X X 15735 0 825 Vish Sankaran Director 1.00 0.00 X 0 0 0 Donald Berwick Director 1.00 0.00 X 0 0 0 Margaret OKane Director 1.00 0.00 X 0 0 0 Richard Gilfillan Director 1.00 0.00 X 0 0 0 Cathy Farmer Director 1.00 0.00 X 0 0 0 Rima Cohen Director 1.00 0.00 X 0 0 0 Margaret Nygren Director 1.00 0.00 X 0 0 0 Julia Bascom Director 1.00 0.00 X 0 0 0 Cuong Do Vice Chair 1.00 0.00 X 0 0 0 James Perrin Director 1.00 0.00 X 0 0 0 Staci Alexander Director 1.00 0.00 X 0 0 0 Bob Galvin Director 1.00 0.00 X 0 0 0 Morenike Giwa-Onaiwu Director 1.00 0.00 X 0 0 0 Chester Finn Director 1.00 0.00 X 0 0 0 Merrill Friedman Director 1.00 0.00 X 0 0 0 Bernard Rosof Chair 2.00 0.00 X X 0 0 0 270317 0 19628 2 false true true 2236878 2236878 85 85 2236963 0 0 85 X 123548 70422 18532 34594 388882 221663 58333 108886 12549 7153 1882 3514 18071 10300 2711 5060 34847 19863 5227 9757 9775 6809 1851 1115 395522 275490 74897 45135 4372 4159 97 116 34017 7659 2069 24289 18666 18666 6526 6526 State Registrations 7113 2998 156 3959 Dues and Subscriptions 115 50 65 1054003 645232 172346 236425 170131 706951 92220 835031 3548 10234 265899 1552216 70263 173620 70263 173620 X 195636 543565 835031 195636 1378596 265899 1552216 1182960 0 X false true X true false X 188470 498421 2236878 2923769 188470 498421 2236878 2923769 1487814 1435955 73 85 158 2923927 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED X 2236963 2236963 2236963 1054003 1054003 1054003 Footnote for uncertain tax position under FIN 48 (Part X) The Organization is a tax-exempt entity under Code Section 501(c)(3) of the Internal Revenue Code(the Code), and are exempt from federal income taxes on related income pursuant to Section 501(a) of the Code and is not considered to be a private foundation. In addition, the Organization is subject to income tax on net income that is derived from business activities that are unrelated to their exempt purposes. Management has determined that the entity is not subject to unrelated business income tax and has not filed an Exempt Organization Business Income Tax Return (Form 990-T) with the IRS. Accordingly, no provision for income taxes is included in the financial statements. The Organization has filed all of its known and required tax returns in a timely manner, includingas permitted, allowed extensions. X X false false false false false false false false false Hoangmai Pham President 15735 825 16560 May-Lynn Andersen Director of Partnerships 146769 4650 8367 159786 Form 990 governing body review Part VI line 11 The IRS Form 990 was prepared by an indpendent CPA and provided to the full Board prior to filing. CEO executive director top management comp Part VI line 15a The executive committee conducts an annual review of the performance of the CEO, including setting compensation for the year. the CEO is responsible for setting the compensation of other key employees of the organization within the parameters of the budget approved by the board of directors. in setting salaries, the CEO reviews information on similar positions at comparable organizations from salary surveys. Other officer or key employee compensation Part VI line 15b Compensation is determined through the annual budgeting process. Governing documents etc available to public Part VI line 19 These documents are available upon request. List of other fees for services expenses Part IX line 11g Other Professioanal Fees and Consulting $395,522