2023-09-04T04:01:42-04:00 2022-12-31 474306215 Mullins PC 7625 Wisconsin Avenue Bethesda MD 20814 990 2022-01-01 812216511 Tatton Brown Rahman Syndrome Community Inc TATT 122 Hunns Lake Road Stanfordville NY 12581 Jill Kiernan Executive Direc 8452643016 2023-09-04 true Jill Kiernan John Mullins P01429307 2027706371 2023-09-04 0 00 AAL1 IAL1 2022 2023-04-26 12:10:37Z Jill Kiernan 165360 false X www.tbrsyndrome.org X 2017 NY TBRS Community aims to support all families affected by TBRS and advance research toward interventions. 5 5 2 30 0 0 305495 163592 5738 0 0 26013 1768 337246 165360 21115 10000 0 25762 105841 0 18897 15149 41246 62026 157087 275220 8273 422765 832865 6831 8658 415934 824207 TBRS Community aims to support all families affected by TBRS and advance research toward interventions. false false 114324 10000 1. Built the Patient-Led TBRS Collaborative Research Network to over 200 scientists, who utilize research tools and resources established by the TBRS Community to create patient focused research agendas, focused on treatment development and cures for TBRS.2. Hosted the TBRS Family Conference and the TBRS Collaborative Research Network Conferences, to provide information and support to families and to encourage collaboration toward treatment development in the scientific community.3. Provided support and information directly to our patient community through the TBRS Education and Outreach Series, TBRS Parent and Caregiver Support Group, TBRS Social Group, and TBRS Cares Program. 114324 true true false false false false false false false false false false false false true false false false false false false false false false false false false true false false false false false false false false false false false false false false false false false false false true 3 0 true 2 true false false false false false false false false false false false false X 5 5 false false false false false false false true false false false true true true false false false false false false NY X Tatton Brown Rahman Syndrome Commun 8452643016 122 Hunns Lake Road Stanfordville NY 12581 Jill Kiernan Executive Director 40.00 0.00 X 78134 0 0 Jennifer York Isaacs Secretary 5.00 0.00 X X 0 0 0 Thomas Watson Treasurer 5.00 0.00 X X 0 0 0 Kacee Richter President 10.00 0.00 X X 0 0 0 Kerry Grens Vice President 5.00 0.00 X X 0 0 0 Erin Rooker Marketing Manager 5.00 0.00 X X 0 0 0 78134 0 0 0 false false false 163592 163592 Other 900099 1768 1768 1768 165360 1768 0 0 10000 10000 78134 60097 8701 9336 16073 14561 762 750 1995 1807 95 93 310 281 15 14 9329 8452 442 435 12392 1419 6973 4000 2400 2300 100 6626 435 3244 2947 6149 6149 4033 4033 1376 1376 2777 2777 Bank and Merchant Fees 60 60 Care Packages 3530 2558 972 State Registrations 1047 797 250 Other 856 856 157087 114324 23866 18897 422765 627616 205249 422765 832865 6831 8658 6831 8658 X 415934 364731 459476 415934 824207 422765 832865 X 8273 400000 0 X false false false X 23199 44255 97657 311233 163592 639936 23199 44255 97657 311233 163592 639936 29166 610770 1768 1768 641704 X Other income Part II line 10 or Part III line 12 Other Income RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Payroll Liabilities 5516 Direct Deposit Payable 3142 8658 true Uplifting Athletes 8 Atkinson Drive Doylestown PA 18901 341986485 501c3 10000 Committee meeting documentation Part VI line 8b All committees are chaired by a Board Member who reports regularly at the Board meetings, disclosing discussions and suggestions for action. No committee currently can act without the Boards approval. Form 990 governing body review Part VI line 11 Annual tax returns are offered to each director for review and they are give 48 hours from receipt to suggest corrections or changes. Conflict of interest policy compliance Part VI line 12c The Organization has a conflict of interest policy which is reviewed by the board and discussed at the annual meeting, any member with a conflict of interest submits it in a written format for presentation to the Board. Governing documents etc available to public Part VI line 19 Any tax or financial information must be requested from the Organization. The Organization will then respond with the information. Part XI response or note to any line in Part XI Part XI - Prior Period AdjustmentsThe prior period adjustment reflects a $400,000 pledge that was recorded during the cash to accrual conversion.