2023-09-01T14:31:14-05:00 2022-12-31 FORVIS LLP 1155 Avenue of the Americas 1200 New York NY 10036 990 2022-01-01 362883000 American Liver Foundation % DAVID TICKER AMER 2126681000 PO Box 299 West Orange NJ 07052 DAVID TICKER CFO 2126681000 2023-07-15 true David Ticker 999009999 Aaron Shapiro P01333816 2128674000 3 2022 2023-04-26 12:10:37Z DAVID TICKER PO Box 299 West Orange NJ 07052 6603332 false X WWW.LIVERFOUNDATION.ORG X 1976 IL OUR MISSION IS TO FACILITATE, ADVOCATE, AND PROMOTE EDUCATION, SUPPORT SERVICES, AND RESEARCH FOR THE PREVENTION, TREATMENT, AND CURE OF LIVER DISEASE. 24 24 33 1500 0 6782864 5799860 0 0 260753 95740 14592 -102758 7058209 5792842 75000 0 0 0 2644169 3077864 0 0 528551 1207797 1178221 3926966 4256085 3131243 1536757 8459273 8657364 1909719 997283 6549554 7660081 X OUR MISSION IS TO FACILITATE, ADVOCATE, AND PROMOTE EDUCATION, SUPPORT SERVICES, AND RESEARCH FOR THE PREVENTION, TREATMENT, AND CURE OF LIVER DISEASE. true false 934788 PUBLIC AND PATIENT EDUCATION: In 2021, the American Liver Foundation completed a NASH Screening Pilot Project in Houston, Texas to provide NASH Screening to at-risk individuals in a diabetes clinic. The center screened over 450 individuals for NASH. This pilot project was then replicated in 9 additional states in 2022 through Think Liver Think Life, the American Liver Foundation's public health campaign. Think Liver Think Life, ALF's national public health campaign, aims to ensure every American understands their risk for liver disease, receives the appropriate diagnostic testing and care coordination and feels well-informed and supported throughout their liver journey. We are planning a nationwide expansion, adding ten new states annually. We anticipate that by 2026, when ALF celebrates its 50th anniversary, Think Liver ThinkLife will be active in all 50 states. To undertake this broad initiative, ALF has developed partnerships and collaborations with key stakeholders, Federally Qualified Health Centers, health departments, diverse faith-based and community groups, and other voluntary health organizations. The American Liver Foundation's digital content allows us to reach millions of people with our information and resource. The ALF website helps us better deliver quality programs and events to our constituents including multimedia webinars, videos and broadcasts. In 2022, ALF did a complete update to our website for a more user-friendly interface including updates to our liver disease pages, patient stories, and resource center. We have added a section on health and wellness and a hepatitis D webpage and new pediatric liver disease information center. ALF held webinars on a variety of topics including clinical trials, liver cancer, diet and nutrition, and acute and sudden liver failure. We created a virtual monthly forum for Biliary Atresia (BA) patients and their families to discuss topics that specifically affect BA Families. For the first time in history, The American Liver Foundation and the American Diabetes Association held a joint program on the connection between NASH and Type-2 Diabetes. ALF held a Rare Disease Summit that brought together rare liver disease stakeholders- patients, caregivers, hepatologists, primary care providers, patient advocacy organization personnel, and industry representatives - for a 2-day virtual Roundtable to identify solutions for improving the health outcomes of individuals with rare liver diseases. This meeting focused on tackling issues in rare disease including misdiagnosis, genetic testing, reducing the patient burden and telemedicine. From this roundtable, we were able to create an Executive Summary and Rare Disease Patient Bill of Rights. Liver Health Today, previously titled the Liver Lowdown, is ALF's e-newsletter is disseminated to provide information about the prevention, treatment and cure of liver disease and about the Foundation's educational and signature programs, an in-depth focus on specific types of liver disease, and profiles of liver patientscaregivers' personal experiences. In 2021, over 215,000 people received each of our e-newsletter issues. ALF held the 3rd annual HCC virtual patient conference in 2022. This conference provided educational sessions and resources for HCC patients and caregivers that are not eligible for a transplant on topics pertaining to patient care, treatment options, emotional wellness in the face of a liver cancer diagnosis, and caregiver resources. Over 200 people attended this event. During the AASLD Liver Meeting, ALF held a community conversation conference session that was attended by patients, physicians, and other organizations. ALF Staff discussed our newest Public Health Initiative, Think Liver Think Life. The American Liver Foundation co-hosted an educational program with the National Coalition of 100 Black Women, Inc- PA Chapter on May 19th. The focus of the program was hepatitis and liver cancer. 842954 PATIENT SUPPORT: The American Liver Foundation's Helpline information specialists are available to answer questions about liver disease and liver wellness, including risk factors, prevention, symptoms, early detection, diagnosis, and treatment options. ALF can direct callers to local services in their area, help them learn about clinical trials and help them find a physician. Interpretation services are available for non-English speakers. The toll free national Helpline received nearly 3,700 requests for information from patients and caregivers through calls, online chats, email and snail mail. We also host a vibrant online community across numerous social media platforms and one website. The American Liver Foundation's Primary Biliary Cholangitis Facebook Support Group currently has over 3,400 members from 2,800 members in 2020 and is our first and largest Facebook Support Community. The NASH Facebook Support Group, a support community for those affected by Nonalcoholic Steatohepatitis (NASH) has grown significantly since its inception in 2018. The group currently has over 3,600 members from 522 members in 2018. This group is open to anyone connected to NASH around the country and serves as a space to feel less alone and seek answers to questions they may have about their journey. Our two newest Facebook Support Groups, Living with Liver Cancer and Life with Biliary Atresia and Beyond have 280 and 420 members respectively. Each of these Facebook Support Groups provides current disease information, nutrition advice, suggestions for everyday living and ongoing support. Every week, the moderators hold a Facebook Chat to encourage dialogue between members. Active moderation and Facebook Chats keep the group engaged and create "buzz" for the group that results in new members joining via word of mouth. Additionally, the Foundation facilities Inspire, a liver disease support group and discussion community where people can find support among others who are experiencing symptoms, complications, and navigating therapies for liver disease. Topics include pediatric liver disease, liver cancer, autoimmune liver disease, viral hepatitis, fatty liver, liver transplantation, and more. We have over 40,000 members in this group. In collaboration with the Hepatitis B Foundation, ALF held a Hepatitis D Roundtable on April 21st and 22nd, 2022. This Roundtable will include 12 physicians, harm-reduction specialists and patients who provided their expertise on barriers to Hepatitis D diagnosis and treatment. Using findings from this roundtable, we have created a whitepaper that will be published in AASLD's Hepatology Communications Journal. 802774 COMMUNITY SERVICE: ALF conducts advocacy work on behalf of the patient community throughout the year, actively raising awareness of pertinent legislation affecting the liver community among the federal government. The American Liver Foundation has 2,100 constituents signed up on our advocacy platform and we regularly share action alerts and important issues for liver patients. Advocates sent 1200 letters to Congress in 2022. After a virtual training in July, ALF Advocates from across the country met with their federal lawmakers and staff during the August recess to inform them about liver disease and urge them to support our legislative priorities. More than 65 advocates from 18 states shared their stories as patients, caregivers, family, and medical professionals during 42 virtual and in-person meetings with staff and Members of Congress. Of those meetings, 4 included the Member of Congress and 8 occurred in-person in the district. Meetings were evenly split between the House and Senate. Advocates asked that Members support the following legislation Living Donor Protection Act (S. 377/H.R. 1255), the Safe Step Act (S. 464/H.R. 2163), the LIVER Act (S. 3041/H.R. 5675), and the HELP Copays Act (H.R. 5801) plus funding requests for NIH, ARPA-H, CDC, and HRSA. The National Public Policy Committee was created in 2022 that includes medical professionals and liver disease patients. The committee is responsible for determining legislative priorities for ALF. 577273 RESEARCH AND PROFESSIONAL EDUCATION 577273 3157789 true true false false false false false false true true true false false false false false true false false false false false false false true false false false false true false false false false false false false false false false false false false false false false false true 43 0 33 true false false false false false true true false false false true false false false X 24 24 false false true false false false false true true false false true true true true true true true true false AL AK AZ AR AP CA CO CT DE DC FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY X X DAVID TICKER 2126681000 PO BOX 299 WEST ORANGE NJ 07052 Lorraine Stiehl CEO 35.0 0.0 X 231894 0 21321 David Ticker CFO 35.0 0.0 X 186712 0 22363 Juliann Kimbrough Chief Mktg, Comms, public aff. 35.0 0.0 X 149299 0 42998 Heidi Daniels VP of Development 35.0 0.0 X 155416 0 19202 Kelly Smith VP of Events 35.0 0.0 X 138856 0 32341 Abby Amankwaa Controller 35.0 0.0 X 130350 0 5967 Sheri Singer Natl Director, Dev./Engagement 35.0 0.0 X 128200 0 323 Jackie Dominguez Natl Sr. Director, Engagement 35.0 0.0 X 121650 0 2674 Dan Weil Chair 0.3 0.0 X X 0 0 0 Deb Tully Treasurer 0.3 0.0 X X 0 0 0 Carlo Frappolli Secretary 0.3 0.0 X X 0 0 0 Thomas Nealon III Board Member 0.3 0.0 X 0 0 0 Nick DeRoma Board Member 0.3 0.0 X 0 0 0 Susan Stone CPA MST Board Member 0.3 0.0 X 0 0 0 Michael Kerr Board Member 0.3 0.0 X 0 0 0 Allan Doerr Board Member 0.3 0.0 X 0 0 0 Gene Cautillo Board Member 0.3 0.0 X 0 0 0 Hillel Tobias MD PHD Board Member 0.3 0.0 X 0 0 0 Mike Braunstein Board Member 0.3 0.0 X 0 0 0 Liz Leesmann Board Member 0.3 0.0 X 0 0 0 Rocky Yapp MD MPH AGAF Board Member 0.3 0.0 X 0 0 0 Nicole Smith PHD Board Member 0.3 0.0 X 0 0 0 Emmanuel Thomas MD PHD Board Member 0.3 0.0 X 0 0 0 Rotonya Carr MD Board Member 0.3 0.0 X 0 0 0 Peter Cullen Board Member 0.3 0.0 X 0 0 0 Bob Pollichino Board Member 0.3 0.0 X 0 0 0 Connie Deneweth Board Member 0.3 0.0 X 0 0 0 Ellen Rucker-Sellers Board Member 0.3 0.0 X 0 0 0 David Frank Board Member 0.3 0.0 X 0 0 0 Kevin Lee Board Member 0.3 0.0 X 0 0 0 Anne Doyen Board Member 0.3 0.0 X 0 0 0 Richard Miller Board Member 0.3 0.0 X 0 0 0 1242377 0 147189 10 false true false AMPLOTECH LLC PO BOX 16422 SAN JUAN PR 00908 MARKETING 163920 1 11655 2397201 675903 2715101 5799860 0 92900 92900 0 0 0 0 0 541806 538966 2840 2840 2840 119611 2397201 271524 -151913 -151913 0 0 0 0 0 0 OTHER 900099 49155 49155 49155 5792842 -7018 0 0 0 0 636908 483904 77571 75433 0 2063093 1567378 251258 244457 27481 20891 3350 3240 143428 109034 17478 16916 206954 157326 25220 24408 0 72009 62683 4172 5154 46540 40512 2697 3331 0 0 14735 14735 266799 232243 15459 19097 49720 37677 742 11301 230654 80495 105772 44387 200892 152732 24410 23750 0 39740 30191 4840 4709 48071 38157 1829 8085 0 0 3081 3081 0 17936 13627 2184 2125 32291 24532 3933 3826 HOTEL AND CATERING 39667 15564 482 23621 MISCELLANEOUS 116086 90843 10532 14711 4256085 3157789 569745 528551 3127780 2416178 21743 30595 584568 171067 0 0 0 0 0 0 0 0 0 0 64949 77410 55635 30112 20048 25523 4640185 5936591 0 0 0 0 0 0 0 0 8459273 8657364 196098 150360 37500 18750 312821 166115 0 0 666063 662058 0 0 0 0 697237 0 0 0 1909719 997283 X 3636730 5591473 2912824 2068608 6549554 7660081 8459273 8657364 1536757 -426230 X false true X true false X 9257672 8927298 5317288 6782864 5799860 36084982 0 0 9257672 8927298 5317288 6782864 5799860 36084982 3873815 32211167 58839 73774 45040 54832 92900 325385 0 25653 35890 184297 113635 49155 408630 36818997 0.87485 0.83084 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED false true 1152635 -208918 943717 988115 164520 1152635 1222206 95449 329540 988115 1112588 222118 112500 1222206 1215883 -75352 27943 1112588 0.78000 0.22000 false false 53135 30112 23023 2500 2500 25523 5430056 -426230 78179 -348051 5778107 14735 14735 5792842 4319529 78179 78179 4241350 14735 14735 4256085 Schedule D, PART IV, LINE 2B FUNDS HELD ON BEHALF OF OTHERS - ALF ACTS AS AN ADMINISTRATOR FOR FUNDS COLLECTED ON BEHALF OF LIVER TRANSPLANT PATIENTS. ALF DISBURSES FUNDS TO COVER THE COST OF PROPERLY DOCUMENTED POST-SURGERY EXPENSES. Schedule D, PART V, LINE 4 THE INTENDED USE OF ENDOWMENT FUNDS HAS BEEN SPECIFIED BY THE DONOR. ALL FUNDS ON HAND ARE USED TO GENERATE INTEREST/DIVIDEND INCOME AND CAPITAL GAINS TO SUPPORT VARIOUS RESEARCH INITIATIVES. Schedule D, Part X, Line 2 ASC 740 FOOTNOTE MANAGEMENT HAS EVALUATED THEIR INCOME TAX POSITIONS UNDER THE GUIDANCE INCLUDED IN ASC 740. BASED ON THEIR REVIEW, MANAGEMENT HAS NOT IDENTIFIED ANY MATERIAL UNCERTAIN TAX POSITIONS TO BE RECORDED OR DISCLOSED IN THE FINANCIAL STATEMENTS. GALA 918769 811669 107100 1278 31590 69274 6633 2918 BOSTON MARATHON 609527 609527 3054 12499 23931 15000 17 988516 976005 12511 11620 34342 27633 4961 26791 2516812 2397201 119611 15952 78431 120838 11594 44709 271524 -151913 X X false false false false false false false false false Lorraine Stiehl CEO 196894 35000 3723 17598 253215 David Ticker CFO 186712 3800 18563 209075 Juliann Kimbrough Chief Mktg, Comms, public aff. 149299 3200 39798 192297 Heidi Daniels VP of Development 155416 3200 16002 174618 Kelly Smith VP of Events 138856 2855 29486 171197 FORM 990, PART III, LINE 2 THINK LIVER THINK LIFE, ALF'S NATIONAL PUBLIC HEALTH CAMPAIGN, AIMS TO ENSURE EVERY AMERICAN UNDERSTANDS THEIR RISK FOR LIVER DISEASE, RECEIVES THE APPROPRIATE DIAGNOSTIC TESTING AND CARE COORDINATION AND FEELS WELL-INFORMED AND SUPPORTED THROUGHOUT THEIR LIVER JOURNEY. FORM 990, PART VI, SECTION A, LINE 4 The Foundation formed a small committee comprised of board members and staff to work on completely rewriting the bylaws so they were simple to understand and reflected the Foundation's new operating structure. The final product was reviewed by our attorneys - Jenner & Block. FORM 990, PART VI, SECTION B, LINE 11B A DRAFT OF THE FORM 990 IS SENT TO THE FINANCE COMMITTEE FOR REVIEW AND COMMENTS IN THE MONTHLY MEETING PRIOR TO FILING. IN ADDITION, A DRAFT OF THE FORM 990 IS ALSO SENT TO EACH BOARD MEMBER FOR DISCUSSION. AFTER QUESTIONS AND COMMENTS ARE ADDRESSED AND THE FORM 990 IS APPROVED, IT IS READY FOR FILING. FORM 990, PART VI, SECTION B, LINE 12C ANNUALLY, OUR CONFLICT OF INTEREST FORM IS COMPLETED BY OFFICERS AND DIRECTORS. THE FORM MUST INDICATE ANY POSSIBLE CONFLICTS OF INTEREST AND BE SIGNED BY ALL OFFICERS AND DIRECTORS. WHEN ANY SUCH CONFLICT OF INTEREST IS RELEVANT TO A MATTER REQUIRING ACTION BY THE BOARD, THE INTERESTED PERSON SHALL CALL IT TO THE ATTENTION OF THE BOARD AND SUCH PERSON SHALL NOT VOTE ON THE MATTER. MOREOVER, THE PERSON HAVING A CONFLICT SHALL RETIRE FROM THE ROOM IN WHICH THE BOARD IS MEETING AND SHALL NOT PARTICIPATE IN THE FINAL DELIBERATION OR DECISION REGARDING THE MATTER UNDER CONSIDERATION. HOWEVER, THAT PERSON SHALL PROVIDE THE BOARD WITH ANY AND ALL RELEVANT INFORMATION. THE MINUTES OF THE MEETING OF THE BOARD, SHALL REFLECT THAT THE CONFLICT OF INTEREST WAS DISCLOSED AND THAT THE INTERESTED PERSON WAS NOT PRESENT DURING THE FINAL DISCUSSION OR VOTE AND DID NOT VOTE. WHEN THERE IS A DOUBT AS TO WHETHER A CONFLICT OF INTEREST EXISTS, THE MATTER SHALL BE RESOLVED BY A VOTE OF THE BOARD. FORM 990, PART VI, SECTION B, LINE 15A CEO COMPENSATION IS DETERMINED BY THE NATIONAL BOARD OF DIRECTOR'S EXECUTIVE COMMITTEE AND APPROVED BY THE BOARD MEMBERS. IN DETERMINING SALARY LEVELS, THE EXECUTIVE COMMITTEE REVIEWS AN ANNUAL SALARY SURVEY OF NATIONAL VOLUNTARY HEALTH ORGANIZATIONS PREPARED FOR THE NATIONAL HEALTH COUNCIL AND REVIEWS PRIOR YEAR PERFORMANCE. CURRENT MARKET CONDITIONS AND THE FINANCIAL CONDITION OF THE AMERICAN LIVER FOUNDATION ARE ALSO CONSIDERED IN SETTING COMPENSATION. THIS REVIEW WAS LAST CONDUCTED IN 2022. FORM 990, PART VI, SECTION B, LINE 15B THE SALARY OF OFFICERS AND KEY EMPLOYEES ARE DETERMINED BY THE CEO AND CFO BASED ON PERFORMANCE, MARKET CONDITIONS AND THE FINANCIAL CONDITION OF THE AMERICAN LIVER FOUNDATION. FORM 990, PART VI, SECTION C, LINE 19 THE FORM 990 IS AVAILABLE VIA WWW.LIVERFOUNDATION.ORG AND FORM 1023 IS AVAILABLE UPON REQUEST.