2023-06-14T08:23:43-05:00 2022-12-31 474526160 EFPR GROUP CPAS PLLC 6390 MAIN STREET SUITE 200 WILLIAMSVILLE NY 14221 990 2022-01-01 161552315 HUNTER'S HOPE FOUNDATION INC HUNT 7166671200 21 PRINCETON PLACE SUITE 12 ORCHARD PARK NY 14127 JACQUE WAGGONER C.E.O. 7166671200 2023-06-12 1 JACQUE WAGGONER 999009999 0 DAVID A URBAN CPA P00630018 7166340700 2023-06-12 3 AAL1 IAL1 2022 2023-04-26 12:10:37Z JACQUE WAGGONER 21 PRINCETON PLACE SUITE 12 ORCHARD PARK NY 14127 1393383 0 X WWW.HUNTERSHOPE.ORG X 1998 NY TO INCREASE PUBLIC AWARENESS, TO SUPPORT, TO FUND RESEARCH EFFORTS TO FIND A CURE FOR KRABBE DISEASE AND OTHER LEUKODYSTROPHIES, AND TO PROMOTE FAMILY VALUES TO PARENTS ALL OVER THE WORLD. 9 9 6 15 0 0 922854 948018 0 0 37329 12534 0 0 960183 960552 277924 324894 0 0 330885 322257 0 0 49929 150130 187541 758939 834692 201244 125860 1273635 1400688 117480 174087 1156155 1226601 X HUNTER'S HOPE FOUNDATION WAS ESTABLISHED TO ADDRESS THE ACUTE NEED FOR INFORMATION AND RESEARCH WITH RESPECT TO KRABBE DISEASE AND RELATED LEUKODYSTROPHIES. IN ADDITION, WE STRIVE TO SUPPORT AND ENCOURAGE THOSE AFFLICTED AND THEIR FAMILIES AS THEY STRUGGLE TO ENDURE, ADJUST, AND COPE WITH THE DEMANDS OF THE FATAL ILLNESSES. ACCORDINGLY OUR MISSION IS FOUR FOLD:- TO BROADEN PUBLIC AWARENESS OF KRABBE DISEASE AND OTHER LEUKODYSTROPHIES THUS INCREASING THE PROBABILITY OF EARLY DETECTION AND TREATMENT.- TO GATHER AND PROVIDE CURRENT, FUNCTIONAL INFORMATION, AND SERVICE LINKAGES TO FAMILIES OF CHILDREN WITH LEUKODYSTROPHIES.- TO FUND RESEARCH EFFORTS THAT WILL IDENTIFY NEW TREATMENTS, THERAPIES, AND ULTIMATELY, A CURE FOR KRABBE DISEASE AND OTHER LEUKODYSTROPHIES.- TO ESTABLISH AN ALLIANCE OF HOPE THAT WILL NOURISH, AFFIRM, AND CONFRONT THE URGENT NEED FOR MEDICAL, FINANCIAL, AND EMOTIONAL SUPPORT OF FAMILY MEMBERS AND THOSE AFFLICTED WITH LEUKODYSTROPHIES. 0 0 149693 EDUCATION & AWARENESS - THE FOUNDATION STRIVES TO BROADEN PUBLIC AWARENESS OF KRABBE DISEASE AND OTHER LEUKODYSTROPHIES THUS INCREASING THE PROBABILITY OF EARLY DETECTION AND TREATMENT. 167837 103894 FAMILY ASSISTANCE - THE FOUNDATION UNDERTAKES TO GATHER AND PROVIDE CURRENT, FUNCTIONAL INFORMATION, AND SERVICE LINKAGES TO FAMILIES OF CHILDREN WITH LEUKODYSTROPHIES.THE FOUNDATION STRIVES TO ESTABLISH AN ALLIANCE OF HOPE THAT WILL NOURISH, AFFIRM, AND CONFRONT THE URGENT NEED FOR MEDICAL, AND FINANCIAL SUPPORT OF FAMILY MEMBERS AND THOSE AFFLICTED WITH LEUKODYSTROPHIES. 386535 221000 RESEARCH - THE FOUNDATION'S GOAL IS TO SUPPORT MEDICAL/RESEARCH EFFORTS THAT WILL IDENTIFY NEW TREATMENTS, THERAPIES, AND ULTIMATELY, A CURE FOR KRABBE DISEASE AND OTHER LEUKODYSTROPHIES. 704065 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 0 0 6 1 0 0 0 0 0 0 0 0 0 0 X 9 9 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 NY X LAURA SCHRANZ 7166671200 21 PRINCETON PLACE UNIT 12 ORCHARD PARK NY 14127 JIM KELLY PRESIDENT 8.00 X X 0 0 0 JILL KELLY CHAIRWOMAN 8.00 X X 0 0 0 PAUL BOSER TREASURER 2.00 X X 0 0 0 CAMRYN KELLY DIRECTOR 1.00 X 0 0 0 GREG CONNORS DIRECTOR 1.00 X 0 0 0 PHIL MAY DIRECTOR 1.00 X 0 0 0 STEVEN SCHMITT DIRECTOR 1.00 X 0 0 0 DAVID KERN DIRECTOR 1.00 X 0 0 0 BRAD RYE DIRECTOR 1.00 X 0 0 0 JACQUE WAGGONER C.E.O. 40.00 X 77083 0 0 77083 0 0 0 0 0 0 0 948018 948018 20640 20640 424725 432831 -8106 -8106 -8106 960552 0 0 12534 221000 221000 103894 103894 77083 61250 9360 6473 214094 170118 25998 17978 8988 6422 1711 855 22092 15785 4206 2101 8241 8241 59652 32120 15974 11558 2522 1973 292 257 36798 27846 4196 4756 8681 5804 2877 9218 9218 3183 3183 8026 1271 6610 145 SUPPLIES 25000 24542 185 273 PRINTING & COPYING 12891 12891 POSTAGE & SHIPPING 10241 7682 518 2041 MISCELLANEOUS 3088 2249 224 615 834692 704065 80698 49929 452954 609113 94743 130852 19200 7618 7618 50021 41008 5170 9013 693950 616497 0 27595 1273635 1400688 2480 14492 115000 132000 27595 117480 174087 X 1156155 1214980 11621 1156155 1226601 1273635 1400688 125860 -55414 0 X X 0 1 X 0 0 X 766781 993407 787445 922854 948018 4418505 766781 993407 787445 922854 948018 4418505 4418505 5376 19422 20461 19221 20640 85120 4503625 0.98110 0.97610 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 38608 30127 8481 11413 10881 532 9013 X 896897 -55414 -55414 952311 8241 8241 960552 826451 0 826451 8241 8241 834692 PART V, LINE 4: THE COMMUNITY FOUNDATION FOR GREATER BUFFALO (CFGB) HOLDS FUNDS ON BEHALF OF THE FOUNDATION. THESE INVESTMENTS ARE ASSETS OF CFGB, WITH THE FOUNDATION BEING THE INCOME BENEFICIARY IN AN AMOUNT WHICH APPROXIMATES THE INCOME EARNED ON THESE INVESTMENTS. PART X, LINE 2: THE FOUNDATION IS EXEMPT FROM INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE (THE CODE); THEREFORE, NO PROVISION FOR INCOME TAXES IS REFLECTED IN THE FINANCIAL STATEMENTS. THE FOUNDATION HAS BEEN CLASSIFIED AS A PUBLICLY SUPPORTED ORGANIZATION THAT IS NOT A PRIVATE FOUNDATION UNDER SECTION 509(A) OF THE CODE. THE FOUNDATION PRESENTLY DISCLOSES OR RECOGNIZES INCOME TAX POSITIONS BASED ON MANAGEMENT'S ESTIMATE OF WHETHER IT IS REASONABLY POSSIBLE OR PROBABLE THAT A LIABILITY HAS BEEN INCURRED FOR UNRECOGNIZED INCOME TAXES. MANAGEMENT HAS CONCLUDED THAT THE FOUNDATION HAS TAKEN NO UNCERTAIN TAX POSITIONS THAT REQUIRE ADJUSTMENT IN ITS FINANCIAL STATEMENTS. U.S. FORMS 990 FILED BY THE FOUNDATION ARE SUBJECT TO EXAMINATION BY TAXING AUTHORITIES. 1 ANN & ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO 225 E CHICAGO AVE CHICAGO IL 60611 362170833 501(C)(3) 20000 0 LEUKODYSTROPHY CARE NETWORK-FAMILY CHILDREN'S HEALTHCARE OF ATLANTA 1400 TULLIE RD NE ATLANTA GA 30329 900779995 501(C)(3) 20000 0 LEUKODYSTROPHY CARE NETWORK-FAMILY DUKE UNIVERSITY 324 BLACKWELL ST DURHAM NC 27701 560532129 501(C)(3) 40000 0 LEUKODYSTROPHY CARE NETWORK-FAMILY KENNEDY KRIEGER INSTITUTE 707 N BROADWAY 5TH FLOOR TOWERS BALTIMORE MD 21205 521524965 501(C)(3) 20000 0 LEUKODYSTROPHY CARE NETWORK-FAMILY MASSACHUSETTS GENERAL HOSPITAL 175 CAMBRIDGE ST SUITE 340 BOSTON MA 02111 041564655 501(C)(3) 20000 0 LEUKODYSTROPHY CARE NETWORK-FAMILY UNIVERSITY OF ROCHESTERGOLISANO CHILDREN'S HOSPITAL 601 ELMWOOD AVE BUFFALO NY 14642 160743209 501(C)(3) 20000 0 LEUKODYSTROPHY CARE NETWORK-FAMILY UNIVERSITY OF UTAH PRIMARY CHILDREN'S HOSPITAL 100 N MARIO CAPECCHI DR SALT LAKE CITY UT 84113 876000525 501(C)(3) 20000 0 LEUKODYSTROPHY CARE NETWORK-FAMILY NATIONWIDE CHILDREN'S HOSPITAL 700 CHILDRENS DRIVE COLUMBUS OH 43205 311036372 501(C)(3) 20000 0 LEUKODYSTROPHY CARE NETWORK-FAMILY UC DAVIS HEALTH SYSTEM 3160 FOLSOM BLVD SUITE 2100 SACRAMENTO CA 95816 946036494 501(C)(3) 20000 0 LEUKODYSTROPHY CARE NETWORK-FAMILY WEILL CORNELL MEDICINE - KOMANSKY CHILDREN'S HOSPITAL 525 EAST 68TH STREET 6TH FL NEW YORK NY 10065 501(C)(3) 10000 0 LEUKODYSTROPHY CARE NETWORK- FAMILY JOHN R OISHEI CHILDREN'S HOSPITAL OF BUFFALO 818 ELLICOTT STREET BUFFALO NY 14203 501(C)(3) 10000 0 LEUKODYSTROPHY CARE NETWORK- FAMILY 11 SPECIFIC ASSISTANCE 17 13860 90033 COST ASSIST WITH EXPENSES FOR TRAVEL, PURCHASE CONVERSION VAN, AUTO REPAIRS, FUEL OIL, & HOME RENOVATION, RAMPS FORM 990, PART VI, SECTION A, LINE 2 JAMES E. KELLY, PRESIDENT, JILL KELLY, CHAIRWOMAN, CAMRYN KELLY, DIRECTOR, AND JACQUE WAGGONER, C.E.O., HAVE A FAMILY RELATIONSHIP. FORM 990, PART VI, SECTION B, LINE 11B THE RETURN PREPARER EMAILS A COPY OF THE FINAL VERSION OF THE FORM 990 TO A DESIGNATED BOARD MEMBER, WHO FORWARDS TO THE REMAINING BOARD MEMBERS. THE DESIGNATED BOARD MEMBER UNDERTAKES A REVIEW OF THE FORM BEFORE FILING. THE FORM IS REVIEWED IN ITS ENTIRETY. ISSUES (IF ANY) ARE RESOLVED WITH THE RETURN PREPARER PRIOR TO FILING THE RETURN. FORM 990, PART VI, SECTION B, LINE 12C EACH BOARD MEMBER IS REQUIRED TO COMPLETE A "DISCLOSURE - CONFLICT OF INTEREST" FORM THAT IS MONITORED BY THE CHIEF EXECUTIVE OFFICER. EACH BOARD MEMBER AGREES TO REPORT TO THE CHIEF EXECUTIVE OFFICER ANY SITUATIONS THAT MAY DEVELOP THAT MAY BE CONSIDERED A CONFLICT OF INTEREST. FORM 990, PART VI, SECTION B, LINE 15 THE BOARD OF DIRECTORS REVIEWS AND APPROVES THE COMPENSATION OF THE FOUNDATION'S C.E.O. AFTER ANALYSIS OF COMPARABLE COMPENSATION DATA. THE DELIBERATION AND DECISION IS DOCUMENTED IN THE BOARD MINUTES. DOCUMENTATION IS ALSO INCLUDED AND RETAINED IN PERSONNEL FILES. FORM 990, PART VI, SECTION C, LINE 19 THE FOUNDATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST. THE FOUNDATION'S FINANCIAL STATEMENTS ARE ALSO AVAILABLE ON THE IRS WEBSITE WITH FORM 990. FORM 990, PART XII, LINE 2C: NO CHANGES HAVE TAKEN PLACE DURING THE FISCAL YEAR ENDED DECEMBER 31, 2022 . KELLY FOR KIDS FOUNDATION 8207 MAIN STREET WILLIAMSVILLE NY 14221 222900614 CHARITABLE FUNDRAISING NY 501(C)(3) LINE 7 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0