2023-02-22T12:18:28-08:00 2022-12-31 451869055 COWORTH FINANCIAL SERVICES LLC 11155 Kenwood Rd Ste 6D Cincinnati OH 45242 990EZ 2022-01-01 270094262 The PAP Foundation Inc CO Cincinnati Childrens Hospital PAPF 5136368916 3333 Burnet Avenue Cincinnati OH 45229 Brenna Carey Secy Treasurer 2023-02-22 true Brenna Carey 999009999 Kevin L Holmes P00227061 5136735469 2 AAL1 IAL1 FAL1 2022 2023-03-07 01:45:13Z X www.papfoundation.org X X 142775 X 135854 0 6264 912 5352 0 657 141863 1978 555 5400 132 22088 30153 111710 364178 475888 364178 475888 364178 475888 364178 475888 The PAP Foundation is a non-profit patient advocacy organization dedicated to finding a cure and to improving the lives of those affected by pulmonary alveolar proteinosis ("PAP").Through advocacy and collaboration, we promote research on PAP and provide information and support for PAP patients, healthcare professionals, and the public. Education Day: We hosted virtual and in-person educational events for physicians, scientists, patients, and families in 2022. Virtual PAP Education Day on February 1, 2022 included an update on COVID-19 research and vaccines and an opportunity for patients and family members to ask questions of the Foundation and PAP specialists. Eighty-seven (87) patients, family members, physicians, and scientists registered for this event.Dr. Bruce Trapnells presentation PAP: Pathogeniesis, epidemiology, diagnosis, natural history, and treatment to the California Thoracic Society (Calthoracic) presentation on August 26, 2022. Approximately, one hundred (100) physicians, scientists, patients, and family members attended this event.PAP Education Day on August 3, 2022 at the University of Michigan in Ann Arbor, Michigan included presentations on PAP 101: definitions, diagnosis, therapies and clinical trials, description of the PAP Foundation community, resources, and how to get involved, and a Patient Perspective on Quality of Life, Oxygen, and Nebulizers. This program involved 16 individuals, including patients, family members, physicians, and scientists.PAP Education Day on October 11, 2022 at the University of California Los Angeles in Los Angeles, CA included presentations on PAP 101: definitions, diagnosis, therapies and clinical trials, description of the PAP Foundation community, resources, and how to get involved, and a Patient Perspective on Quality of Life, Oxygen, and Nebulizers. Twenty-nine (29) patients, family members, physicians, and scientists registered for this event. 30153 30153 Christopher Hameetman President 3.00 0 Tisha Wang MD Vice President 3.00 0 Steve Park Second VP 3.00 0 Brenna Carey Secy Treasurer 3.00 0 Bruce Trapnell MD Chairman 3.00 0 false false false false false false false 0 0 0 false 0 0 false Brenna Carey 3333 Burnet Avenue Cincinnati OH 45229 5136368916 false false false false false false false false false false false NONE NONE true X 108250 54198 83789 122879 135854 504970 0 0 108250 54198 83789 122879 135854 504970 390705 114265 0 997 8428 420 7927 5352 23124 187 657 844 528938 0.21600 0.19850 X Current Year Facts and Circumstances: The PAP Foundation seeks both a cure and effective treatment for Pulmonary Alveolar Proteinosis (PAP). PAP is a life-threatening lung disorder that affects men, women and children. PAP is very rare. As a consequence, the pool of donors is small as compared to most publicly-supported organizations. The PAP Foundation does not benefit any one individual or any related group; rather, the Foundation is dedicated to finding a cure for all those afflicted with PAP, and as such represents the broad interests of the general public. The Foundation promotes research on PAP and provides information and support for PAP patients, wherever they may be. The Foundation seeks to expand its contribution base through the provision of information to patients, healthcare professionals and the public.In 2019, two large contributions were received from donors who previouly had not made gifts in prior years. Those contributions are included in full in Schedule A. Additionally, substantial contributions were received in 2020, 2021 and 2022 from relatively few donors, all of which are reported on Schedule A. The Foundation is slowly building its support from the general public. Only relatively small contributions were received in 2016 and 2017. The Foundation anticipates that it will not meet the 33 1/3% test for several years. The public support percentage does continue to rise - from 19.85% in 2021 to 21.6% in 2022. Gifts are currently being made by multiple non-related persons. The board consists of unrelated individuals who represent a broad spectrum of society. Prior Year Facts and Circumstances: The PAP Foundation seeks both a cure and effective treatment for Pulmonary Alveolar Proteinosis (PAP). PAP is a life-threatening lung disorder that affects men, women and children. PAP is very rare. As a consequence, the pool of donors is small as compared to most publicly-supported organizations. The PAP Foundation does not benefit any one individual or any related group; rather, the Foundation is dedicated to finding a cure for all those afflicted with PAP, and as such represents the broad interests of the general public. The Foundation promotes research on PAP and provides information and support for PAP patients, wherever they may be. The Foundation seeks to expand its contribution base through the provision of information to patients, healthcare professionals and the public.In 2019, two large contributions were received from donors who previouly had not made gifts in prior years. Those contributions are included in full in Schedule A. Additionally, substantial contributions were received in both 2020 and 2021 from relatively few donors, all of which are reported on Schedule A. The Foundation is slowly building its support from the general public. Only relatively small contributions were received in 2016 and 2017. The Foundation anticipates that it will not meet the 33 1/3% test for several years. Gifts are currently being made by multiple non-related persons. The board consists of unrelated individuals who represent a broad spectrum of society. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Other Revenue.1 Miscellaneous $657 Other Expenses.1005 Travel $16160 Other Expenses.1 Dues and Memberships $3590 Other Expenses.2 Supplies $2176 Other Expenses.3 Small Equipment $162