2023-11-15T12:47:56-06:00 2022-12-31 251371209 CASE SABATINI & COMPANY 470 STREETS RUN ROAD PITTSBURGH PA 15236 990 2022-01-01 202529619 THE HEMOPHILIA ALLIANCE GROUP PURCHASING ORGANIZATION HEMO 2152799236 2655 ULMERTON RD 263 CLEARWATER FL 33762 JOSEPH N PUGLIESE PRESIDENT 2152799236 2023-11-13 1 JOSEPH PUGLIESE 999009999 0 DEBRA S PITSCHMAN P00556023 4128814411 2 AAL1 IAL1 2022 2023-04-26 12:10:37Z X THE HEMOPHILIA ALLIANCE JOSEPH N PUGLIESE 2655 ULMERTON RD 263 CLEARWATER FL 33762 8928051 0 X WWW.HEMOALLIANCE.ORG X 2005 MD THE HEMOPHILIA ALLIANCE WORKS TO ENSURE MEMBER HEMOPHILIA TREATMENT CENTERS HAVE THE EXPERTISE, RESOURCES AND PUBLIC SUPPORT TO SUSTAIN THEIR INTEGRATED CLINICAL AND PHARMACY SERVICES FOR INDIVIDUALS WITH BLEEDING AND CLOTTING DISORDERS. 14 14 9 0 0 0 518982 678263 6971556 8069115 1833 151636 43604 29037 7535975 8928051 2442000 2272430 0 0 2217816 2240611 0 0 0 981728 1747703 5641544 6260744 1894431 2667307 7827935 21636521 1240237 12381516 6587698 9255005 THE HEMOPHILIA ALLIANCE PROVIDES MEMBER HEMOPHILIA TREATMENT CENTERS WITH RESOURCES AND SERVICES TO SUSTAIN THE COMPREHENSIVE CARE MODEL FOR INDIVIDUALS WITH BLEEDING AND CLOTTING DISORDERS. 0 0 5621968 2272430 8098152 TO ACT AS A BROKER AND/OR PURCHASING AGENT FOR MEMBERS TO OBTAIN PURCHASING TERMS FOR BLOOD CLOTTING FACTOR AND OTHER MATERIALS USED TO TREAT INDIVIDUALS WITH HEMOPHILIA OR RELATED BLEEDING DISORDERS. COUNSELING CENTERS ON COMPLYING WITH STATE & FEDERAL LAW AND GRANT REQUIREMENTS, AIDING IN THE PRODUCTION OF EDUCATIONAL PIECES, PROMOTING THE VALUE OF THE COMPREHENSIVE CARE MODEL TO POLICY MAKERS, PATIENTS AND THIRD PARTY PAYERS. 5621968 1 1 0 1 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 1 5 0 1 9 1 0 0 0 0 0 0 0 0 0 0 0 0 X 14 14 0 0 0 0 0 0 0 1 0 0 0 1 1 1 1 0 1 1 1 0 X JOSEPH PUGLIESE 2152799236 20 VINE STREET 1227 LANSDALE PA 19446 BECKY BURNS DIRECTOR 2.00 X 0 0 0 COLLEEN DRUZGAL DIRECTOR 1.00 X 0 0 0 DAN DALTON DIRECTOR 1.00 X 0 0 0 DEAN M HINDENLANG PHD DIRECTOR 2.00 X X 0 0 0 ERIC GRAY CPA VICE CHAIR 2.00 X X 0 0 0 HEIDI LANE CHAIR 2.00 X X 0 0 0 KIMO STINE DIRECTOR 1.00 X 0 0 0 LAURIE REGER DIRECTOR 1.00 X 0 0 0 LEIGH CARPENTER RPH DIRECTOR 1.00 X 0 0 0 MICHAEL SILVEY MD DIRECTOR 1.00 X 0 0 0 RALPH WOODS SECRETARY 1.00 X 0 0 0 REGINA BUTLER RN-BC DIRECTOR 1.00 X 0 0 0 STACY CROTEAU DIRECTOR 1.00 X 0 0 0 STEPHANIE RAYMOND DIRECTOR 1.00 X 0 0 0 STEVEN M POWELL MBA TREASURER 2.00 X X 0 0 0 ZACK DUFFY DIRECTOR 1.00 X 0 0 0 JEFFREY BLAKE VICE PRESIDENT 37.00 X 254898 0 36738 JOSEPH N PUGLIESE PRESIDENT 38.00 X 647475 0 146619 SEAN SINGH VICE PRESIDENT 37.00 X 245988 0 26883 JEFFREY A AMOND DIRECTOR, MEMBER & COMMUNITY RELATIONS 40.00 X 155925 0 9356 KAREN H HAUSE DIRECTOR, MEMBER & COMMUNITY RELATIONS 40.00 X 153433 0 9528 KIET HUYNH MANAGER OF IT SOLUTIONS 40.00 X 113313 0 11824 MARK A PLENCNER DIRECTOR, MEMBER & COMMUNITY RELATIONS 40.00 X 173065 0 19855 1744097 0 260803 7 0 1 0 KARAN LEGAL GROUP 1001 KENWOOD PARKWAY MINNEAPOLIS MN 55403 PROFESSIONAL SERVICES 219478 ARTEMIS POLICY GROUP 1150 CONNECTICUT AVE SUITE 803 WASHINGTON DC 20036 PROFESSIONAL SERVICES 202849 GLO & ASSOCIATES 3432 W TRUMAN BLVD SUITE 201 JEFFERSON CITY MO 65109 HEALTHCARE CONSULTING 100378 3 678263 678263 ADMIN FEES 561499 7846115 7846115 MEETINGS/CONFERENCE 561499 148000 148000 WEBINAR 561499 75000 75000 8069115 151636 151636 MISC INCOME 561499 29037 29037 29037 8928051 8098152 0 151636 2272430 2272430 1148361 1033525 114836 704586 669357 35229 146687 139353 7334 128051 121648 6403 112926 107280 5646 280179 69300 210879 9435 9435 31500 31500 432180 432180 20532 941 19591 21737 4324 17413 230612 143528 87084 574151 574151 14191 14191 COMMUNICATION 47500 47500 PRINTING & REPRODUCTION 33880 1519 32361 DUES & SUBSCRIPTIONS 29134 408 28726 TELECOMMUNICATIONS 10286 3331 6955 12386 1193 11193 6260744 5621968 638776 0 258451 259860 7569484 21376661 7827935 21636521 1240237 12381516 1240237 12381516 X 6587698 9255005 6587698 9255005 7827935 21636521 2667307 0 X 0 0 0 X 434394 495276 473999 518982 678263 2600914 4987323 5409549 6198850 7015160 8217771 31828653 5421717 5904825 6672849 7534142 8896034 34429567 0 0 0 34429567 33335 45799 11377 1833 151636 243980 33335 45799 11377 1833 151636 243980 5455052 5950624 6684226 7535975 9047670 34673547 0.99300 0.99660 0.00700 0.00340 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 0 0 0 0 1 31500 0 0 31500 0 PART II-B, LINE 1: ENGAGED LEGISLATIVE CONSULTANTS TO COORDINATE AND CONDUCT MEETINGS WITH LEGISLATORS REGARDING HEALTHCARE MATTERS, 340B LEGISLATION PROPOSED AND TOPICS PERTINENT TO THE ORGANIZATION'S MISSION. 0 MANUFACTURER REBATES PAYABLE 12381516 12381516 1 AMERICAN THROMBOSIS AND HEMOSTASIS NETWORK 67 RED ROCK CIRCLE ROCHESTER NY 14626 205244339 501(C)(3) 525000 0 ENHANCED DATA MANAGEMENT WITHIN HEMOPHILIA TREATMENT CENTERS. BLEEDING DISORDERS ALLIANCE OF ILLINOIS 210 S DESPLAINES ST BDAI CHICAGO IL 60661 362390156 501(C)(3) 15000 0 PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS. HEMOPHILIA COUNCIL OF CALIFORNIA 717 K STREET 501 SACRAMENTO CA 95814 680182998 501(C)(3) 10000 0 PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS. INDIANA HEMOPHILIA & THROMBOSIS CENTER INC 8326 NAAB RD INDIANAPOLIS IN 46260 352047838 501(C)(3) 415930 0 SUPPORT FOR PARTNERS PHYSICIAN ACADEMY TO EDUCATE EARLY CAREER PHYSICIANS NATIONAL HEMOPHILIA FOUNDATION 7 PENN PLAZA SUITE 1204 NEW YORK NY 10012 135641857 501(C)(3) 511000 0 PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS. THE HEMOPHILIA ALLIANCE FOUNDATION 20 VINE STREET 1447 LANSDALE PA 19446 800902096 501(C)(3) 522000 0 SUPPORT FOR GRANTS AND OR GIFTS TO ORGANIZATIONS THAT ASSIST INDIVIDUALS IN MANAGING THEIR CARE OF BLEEDING AND CLOTTING DISORDERS. WORLD FEDERATION OF HEMOPHILIA 911 CENTRAL AVENUE ALBANY NY 12206 161513923 501(C)(3) 260000 0 PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS. THE COALITION FOR HEMOPHILIA B INC 757 3RD AVENUE 20TH FLOOR NEW YORK NY 10017 133686549 501(C)(3) 6500 0 PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS. PART I, LINE 2: THE BOARD OF DIRECTORS APPROVES A TOTAL GRANT BUDGET AND THEN DISSEMINATES THE INDIVIDUAL AWARDS GIVEN TO THE ORGANIZATIONS LISTED IN PART II OF SCHEDULE I. X X X X X X 0 1 0 0 0 0 0 1 0 JOSEPH N PUGLIESE PRESIDENT 431650 0 215825 0 0 0 146619 0 0 0 794094 0 0 0 JEFFREY BLAKE VICE PRESIDENT 222813 0 32085 0 0 0 27000 0 9738 0 291636 0 0 0 SEAN SINGH VICE PRESIDENT 220301 0 25687 0 0 0 19679 0 7204 0 272871 0 0 0 MARK A PLENCNER DIRECTOR, MEMBER & COMMUNITY RELATIO 154993 0 18072 0 0 0 10384 0 9471 0 192920 0 0 0 JEFFREY A AMOND DIRECTOR, MEMBER & COMMUNITY RELATIO 137025 0 18900 0 0 0 9356 0 0 0 165281 0 0 0 KAREN H HAUSE DIRECTOR, MEMBER & COMMUNITY RELATIO 134120 0 19313 0 0 0 9206 0 322 0 162961 0 0 0 PART I, LINE 4B JOSEPH N. PUGLIESE BECAME VESTED IN A MULTI-YEAR, INDEPENDENT COMPENSATION COMMITTEE APPROVED, SECTION 457(F) DEFERRED COMPENSATION PLAN PAYABLE IN THE AMOUNT OF $119,619 FORM 990, PART VI, SECTION A, LINE 8B MEETINGS ARE DOCUMENTED AT THE GOVERNING BODY LEVEL. THAT IS THE ONLY BODY WITH AUTHORITY TO ACT OF BEHALF OF THE ALLIANCE. FORM 990, PART VI, SECTION B, LINE 11B A PDF COPY IS PROVIDED ELECTRONICALLY VIA E-MAIL TO THE ORGANIZATION. THE PDF COPY IS REVIEWED BY THE FINANCE COMMITTEE FOR ANY MODIFICATIONS AND THEN DISTRIBUTED TO THE FULL BOARD OF DIRECTORS FOR REVIEW AND FEEDBACK PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C REGULAR REVIEW THROUGH MONTHLY BOARD MEETINGS AND PEER REVIEW. FORM 990, PART VI, SECTION B, LINE 15 THE ORGANIZATION HAS ADOPTED AN EXECUTIVE COMPENSATION & INTERMEDIATE SANCTIONS POLICY THAT APPLIES TO ITS OFFICERS. THE PURPOSE OF THE POLICY IS TO ENSURE THAT ITS COMPENSATION ARRANGEMENTS WITH RELATED PARTIES ARE EVALUATED AND ENTERED INTO AT ARMS' LENGTH AND ANY COMPENSATION THAT IS PAID TO A RELATED PARTY IS REASONABLE AND REFLECTS FAIR MARKET VALUE. THE POLICY ENCOURAGES THE APPLICATION OF THE REBUTTABLE PRESUMPTION STANDARD OF CODE SECTION 4958 AND THE RELATED TREASURY REGULATIONS BY (A) EXCLUDING ANY INTERESTED PARTY FROM THE DECISION-MAKING PROCESS; (B) REQUIRING DISINTERESTED BOARD OR COMMITTEE MEMBERS TO OBTAIN AND RELY UPON COMPARABILITIY DATA WHEN SETTING THE PROPOSED COMPENSATION TERMS; (C) REQUIRING APPROVAL OF THE TRANSACTION IN ADVANCE BY DISINTERESTED DIRECTORS OR COMMITTEE MEMBERS; AND (D) REQUIRING CONTEMPORANEOUS DOCUMENTATION (I.E., MINUTES) REFLECTING THE DECISION AND THE PROCESS BY WHICH IT WAS MADE. THE ORGANIZATION RETAINED A COMPENSATION CONSULTANT TO CONDUCT A STUDY AND PROVIDE COMPARATIVE SALARY MARKET DATA FOR THE CONSIDERATION OF ITS EXECUTIVE COMMITTEE CONSISTING OF INDEPENDENT DIRECTORS. FORM 990, PART VI, SECTION C, LINE 19 INFORMATION PROVIDED TO PUBLIC UPON REQUEST. HEMOPHILIA ALLIANCE NETWORK SERVICES LLC 2655 ULMERTON ROAD 216 CLEARWATER FL 33762 320519019 PROVIDE RESOURCES AND SUPPORT TO MEMBER TREATMENT CENTERS FL