2023-11-14T08:48:04-06:00 2022-12-31 450250958 EIDE BAILLY LLP 810 S CINCINNATI AVE STE 600 TULSA OK 741191623 990 2022-01-01 273646193 GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS GLOB 9189985798 PO BOX 33238 TULSA OK 74153 MELISSA BRYCE EXECUTIVE DIRECTOR 9182307713 2023-11-10 1 MELISSA BRYCE 999009999 1 CHANDRA VENABLE CPA P00104736 9187485000 2023-11-10 2 AAL1 IAL1 2022 2023-04-26 12:10:37Z X MELISSA BRYCE 5663 SOUTH PITTSBURG AVENUE TULSA OK 741357812 922786 0 X WWW.THEGFPD.ORG X 2010 OK THE GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS IS DEDICATED TO IMPROVING THE LIVES OF INDIVIDUALS WITH PEROXISOMAL DISORDERS BY FUNDING RESEARCH, CHAMPIONING SCIENTIFIC COLLABORATION, AND EMPOWERING FAMILIES AND PROFESSIONALS THROUGH EDUCATIONAL PROGRAMS AND SUPPORT SERVICES. 13 13 2 50 0 0 688588 799711 0 0 2090 4748 -5126 11395 685552 815854 17975 31544 0 0 92292 102406 0 0 133416 353526 1016074 463793 1150024 221759 -334170 1176716 851736 32922 47958 1143794 803778 X THE MISSION OF THE GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS IS TO IMPROVE THE LIVES OF INDIVIDUALS WITH PEROXISOMAL DISORDERS BY FUNDING RESEARCH, CHAMPIONING SCIENTIFIC COLLABORATION, AND EMPOWERING FAMILIES AND PROFESSIONALS THROUGH EDUCATIONAL PROGRAMS AND SUPPORT SERVICES. 0 0 643285 5541 FAMILY SUPPORT PROGRAM: HEALTH LITERACY: THE GFPD IS FOCUSED ON BUILDING HEALTH AND SCIENTIFIC LITERACY FOR PATIENTS AND CAREGIVERS THROUGH A WIDE ARRAY OF COMMUNICATION MECHANISMS. THROUGH A POWERFUL WEBSITE THAT WAS REDESIGNED IN 2022 TO CREATE GREATER EASE OF USE AND ACCESS TO RESOURCES, THE GFPD REACHED HUNDREDS OF FAMILIES WORLDWIDE TO DISSEMINATE INFORMATION INCLUDING THE ONLY PEER-REVIEWED TREATMENT GUIDELINES FOR PEROXISOMAL PATIENTS. ADDITIONALLY, WE HAVE MORE THAN 4,000 FOLLOWERS WORLDWIDE ON SOCIAL MEDIA WHERE MORE THAN HALF OF THE POSTS AND MESSAGING ARE DESIGNED TO EMPOWER CAREGIVERS OF PATIENTS WITH HEALTH INFORMATION AND OTHER TOOLS FOR CLINICAL OUTCOMES. PATIENT SUPPORT:THE GFPD HOSTED A BIENNIAL CONFERENCE IN 2022 FOR 294 PARTICIPANTS COMPRISING FAMILIES, PATIENTS, RESEARCHERS, SCIENTISTS, PHYSICIANS, OTHER CLINICIANS, UNIVERSITY STUDENTS AND FELLOWS, INTERNS AND TRAINED TEAM MEMBERS TO ENGAGE IN FIVE DAYS OF LEARNING, SUPPORTS AND EXCHANGE FOR FAMILIES WITH PEROXISOMAL PATIENTS. THERE WERE MORE THAN 60 SESSIONS FOCUSED ON SCIENCE AND MEDICINE ADVANCEMENTS, CARE PROVISION, MENTAL HEALTH SUPPORTS, AND MORE. ADDITIONALLY, THE CONFERENCE WAS ABLE TO PROVIDE CARE FOR CHILDREN OF VARYING NEEDS THROUGH ITS WARRIOR CAMP MODEL THAT PAIRS UNIVERSITY INTERNS WITH FAMILIES AND CHILDREN. FINALLY, THE GFPD WAS ABLE TO PROVIDE ACCESS TO MORE THAN $100,000 WORTH OF PRO BONO CONSULTATIONS FROM PHYSICIANS, SCIENTISTS, ALLIED HEALTH PROFESSIONALS, ETC. TO FAMILIES FROM AROUND THE WORLD. OTHER ACTIVITIES:THE GFPD HOSTED A NUMBER OF VIRTUAL MEET-UPS, WEBINARS AND SUPPORT GROUPS FOR PARENTS AND CAREGIVERS TO INCREASE HEALTH LITERACY THAT RESULTS IN BETTER CLINICAL OUTCOMES FOR PATIENTS, LINKAGE TO CARE PROVIDERS ACROSS THE COUNTRY, AS WELL AS PROVIDE NECESSARY EMOTIONAL AND BEHAVIORAL SUPPORTS FOR CAREGIVERS AND ASSIST IN ADVOCACY AND POLICY CHANGE FOR RARE DISEASE PATIENTS. 257600 31544 RESEARCH AND MEDICINE:THE GFPD HAS ESTABLISHED A STRONG COMMITTEE OF PHYSICIANS AND SCIENTISTS AS PART OF OUR MEDICAL AND SCIENTIFIC ADVISORS GROUP. THESE INDIVIDUALS COMPRISE RESEARCHERS, CLINICIANS AND EXPERTS FROM NORTH AMERICA AND EUROPE THAT TREAT AND ASSIST PEROXISOMAL PATIENTS THROUGH CLINICAL MEDICINE AND RESEARCH. THE GFPD HAS AWARDED A NUMBER OF GRANTS FOR FURTHER RESEARCH INCLUDING NATURAL HISTORY STUDY, MOUSE MODEL RESEARCH AND ACCESS TO GENETIC COUNSELING AND INFORMATION. PRIMARY RESEARCH PARTNERS INCLUDE MCGILL UNIVERSITY, BAYLOR COLLEGE OF MEDICINE, UNIVERSITY OF SOUTHERN CALIFORNIA, UNIVERSITY OF AMSTERDAM, THE KENNEDY KRIEGER INSTITUTE AND MONTCLAIR STATE UNIVERSITY. ADDITIONALLY, THE GFPD HAS CLINICAL ADVISORS FROM A NUMBER OF CHILDREN'S HOSPITALS THROUGHOUT NORTH AMERICA. 900885 1 1 0 0 0 0 0 0 0 0 1 1 0 0 0 1 1 0 0 0 0 0 0 0 1 0 0 1 1 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 20 0 1 2 1 0 0 0 0 0 0 0 0 0 0 0 0 X 13 13 0 0 0 0 0 0 0 1 0 0 0 1 1 1 1 1 1 1 0 0 AL AR CA CO CT DC FL GA HI IL KS KY MA MD ME MI MN MS NC NJ NM NY OH OK OR PA RI SC TN UT VA WA WI WV NH X JACKIE BROOKS 9187485000 810 S CINCINNATI AVE STE 600 TULSA OK 741191623 KELLY DAUER-HUBSCHMITT CHAIR 1.00 X X 0 0 0 DAVID LAPIDUS VICE CHAIR 1.00 X X 0 0 0 BRIAN TIMS CPA TREASURER 0.50 X X 0 0 0 MEGHAN MEYERS SECRETARY 0.50 X X 0 0 0 CORIN CHAPMAN DIRECTOR 0.50 X 0 0 0 DENNIS CARLSON DIRECTOR 0.50 X 0 0 0 CHAD JOHNSON DIRECTOR 0.50 X 0 0 0 ERICA GOLLE DIRECTOR 0.50 X 0 0 0 JOSH MATEFFY DIRECTOR 0.50 X 0 0 0 CHRIS OSTERTAG DIRECTOR 0.50 X 0 0 0 NATALIE CLOUSE DIRECTOR 0.50 X 0 0 0 CAROLINA ALFARO DIRECTOR 0.50 X 0 0 0 KAROLINE BETHEA-JONES DIRECTOR 0.50 X 0 0 0 MELISSA BRYCE EXECUTIVE DIRECTOR 40.00 X 83654 4583 0 83654 4583 0 0 0 0 0 0 362706 437005 30652 799711 4748 4748 109891 362706 104037 5854 5854 6617 2895 3722 3722 OTHER INCOME 812900 1819 1819 1819 815854 5541 0 10602 X 20000 20000 11544 11544 88237 75001 8824 4412 7342 2605 4584 153 210 171 29 10 6617 5373 928 316 357 357 395437 303690 61244 30503 40980 153 8806 32021 58694 49078 2086 7530 66384 59045 1842 5497 20022 15919 1742 2361 366656 343198 20667 2791 5531 5181 350 1708 1384 188 136 7249 5875 797 577 FUNDRAISING EXPENSE 49314 2917 46397 3742 2668 362 712 1150024 900885 115723 133416 458992 163741 667850 431148 5000 1681 22534 2609 1164 42786 26973 14663 8641 2798 6022 195154 1176716 851736 32922 47958 32922 47958 X 784325 372630 359469 431148 1143794 803778 1176716 851736 -334170 -5846 0 X 0 1 X 1 0 X 521673 583884 467235 688588 799711 3061091 521673 583884 467235 688588 799711 3061091 478879 2582212 8591 11885 3109 2090 4748 30423 2350 1595 5854 9799 3101313 8848 0.83260 0.83660 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: OTHER INCOME RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 14663 8641 6022 6022 CHARLES SCHWAB INVESTMENTS-EQUITY 195154 F 195154 X 809650 -5847 -5847 815497 357 357 815854 1149667 0 1149667 357 357 1150024 PART X, LINE 2: THE FOUNDATION HAS EVALUATED IF THERE ARE ANY UNCERTAIN TAX POSITIONS. NO UNCERTAIN TAX POSITIONS WERE IDENTIFIED. THE FOUNDATION HAD NO ACCRUED INTEREST OR PENALTIES RELATING TO ANY TAX CONTINGENCIES. FEDERAL TAX RETURNS OF THE FOUNDATION FOR THE YEARS ENDED DECEMBER 31, 2019, THROUGH DECEMBER 31, 2021 ARE SUBJECT TO EXAMINATION BY THE INTERNAL REVENUE SERVICE. ANY TAX, PENALTY, OR INTEREST WHICH MIGHT RESULT FROM AN EXAMINATION WILL BE INCLUDED IN OPERATING EXPENSE, IF INCURRED. TEE IT UP 259632 211090 48542 1053 15833 7076 556 HUES FOR HOPE 166635 105286 61349 14864 10138 18151 3631 14566 2 46330 46330 4733 5741 7100 595 472597 362706 109891 15917 30704 30968 10731 15717 104037 5854 0 THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER 5323 HARRY HINES BOULEVARD MC 9029 DALLAS TX 75390 756002868 OTHER EXEMPT ENTITY 20000 0 GENE THERPAY FOR ZELLWEGER SPECTURM DISORDERS-PEX 16 PROJECT NORD, DIVERSITY, PROGRAMMING 1 11544 X PRODUCTS 6 30652 PRODUCTS 0 1 0 FORM 990, PART VI, SECTION A, LINE 8B THE ORGANIZATION DOES NOT HAVE A COMMITTEE WITH AUTHORITY TO ACT ON BEHALF OF THE GOVERNING BODY. FORM 990, PART VI, SECTION B, LINE 11B FINANCIAL STATEMENTS WERE PREPARED BY THE GFPD CFO AND AUDITED BY AN INDEPENDENT AUDITOR. THESE FINANCIAL STATEMENTS WERE REVIEWED BY THE BOARD AND THE FINANCE COMMITTEE AND USED TO PREPARE THE 990. THE 990 IS PREPARED BY AN OUTSIDE FIRM AND THEN REVIEWED BY THE EXECUTIVE DIRECTOR AND FINANCE COMMITTEE, WHICH IS THEN SUBMITTED TO THE BOARD FOR FINAL REVIEW AND APPROVAL BEFORE THE 990 IS FILED. FORM 990, PART VI, SECTION B, LINE 12C BOARD MEMBERS ARE GIVEN AN ANNUAL CONFLICT OF INTEREST STATEMENT THAT THEY REVIEW AND SIGN. THE GFPD CFO REVIEWS ANY CONFLICTS AND ANY POTENTIAL CONFLICTS AS INVOICES ARE PAID AND BUSINESS IS BEING TRANSACTED. FORM 990, PART VI, SECTION B, LINE 15A PROCESS FOR DETERMINING COMPENSATION IS BASED ON THE NONPROFIT SALARY SURVEY PUBLISHED BY THE NATIONAL COUNCIL OF NONPROFITS. FORM 990, PART VI, SECTION C, LINE 19 DOCUMENTS ARE AVAILABLE UPON REQUEST. FORM 990, PART IX, LINE 11G PROFESSIONAL SERVICES: PROGRAM SERVICE EXPENSES 302,675. MANAGEMENT AND GENERAL EXPENSES 61,219. FUNDRAISING EXPENSES 30,485. TOTAL EXPENSES 394,379. MEMBERSHIP FEES: PROGRAM SERVICE EXPENSES 1,015. MANAGEMENT AND GENERAL EXPENSES 25. FUNDRAISING EXPENSES 18. TOTAL EXPENSES 1,058.