2023-10-17T09:25:06-05:00 2022-12-31 390919055 RITZ HOLMAN LLP 330 E KILBOURN AVE SUITE 550 MILWAUKEE WI 53202 990 2022-01-01 464152355 CHILDHOOD ARTHRITIS AND RHEUMATOLOGY RESEARCH ALLIANCE CHIL 2027721028 1050 CONNECTICUT AVENUE NW 500 WASHINGTON DC 20036 JAY MEHTA MD MS TREASURER 2027721028 2023-10-17 1 JAY MEHTA MD MS 999009999 0 KATY L SOMMER P00273273 4142711451 2023-10-17 2 AAL1 IAL1 2022 2023-04-26 12:10:37Z ROBERT COLBERT MD PHD 1050 CONNECTICUT AVENUE NW 500 WASHINGTON DC 20036 10561848 0 X HTTPS://WWW.CARRAGROUP.ORG/ X 2014 CA CARRA MEMBERS WORK TOGETHER TO CAPITALIZE ON OPPORTUNITIES, ACTIVELY DEVELOP A STRUCTURE AND A SCIENTIFIC AGENDA, AND COLLABORATE WITH POTENTIAL FUNDING SOURCES TO CREATE A RESEARCH ALLIANCE THAT BENEFITS OUR PATIENTS. CARRA CONDUCTS COLLABORATIVE RESEARCH TO PREVENT, TREAT AND CURE PEDIATRIC RHEUMATIC DISEASES. 11 7 0 6 0 0 205868 648501 6231027 9747478 1422 165869 29753 0 6468070 10561848 1041992 2002352 0 0 263470 1060475 0 0 0 8719023 8081893 10024485 11144720 -3556415 -582872 18755308 17073918 4780755 3682237 13974553 13391681 X CARRA MEMBERS WORK TOGETHER TO CAPITALIZE ON OPPORTUNITIES, ACTIVELY DEVELOP A STRUCTURE AND A SCIENTIFIC AGENDA, AND COLLABORATE WITH POTENTIAL FUNDING SOURCES TO CREATE A RESEARCH ALLIANCE THAT BENEFITS OUR PATIENTS. CARRA CONDUCTS COLLABORATIVE RESEARCH TO PREVENT, TREAT AND CURE PEDIATRIC RHEUMATIC DISEASES. 0 0 7806542 9431171 CARRA REGISTRY: CARRA AND THE DUKE CLINICAL RESEARCH INSTITUTE (DCRI) ARE COLLABORATING TO LAUNCH THE SECOND PHASE OF THE CARRA REGISTRY, A REGISTRY OF CHILDREN AND YOUNG ADULTS WITH PEDIATRIC-ONSET RHEUMATIC CONDITIONS SUCH AS JUVENILE IDIOPATHIC ARTHRITIS (JIA). THE REGISTRY IS A CORNERSTONE OF CARRA AND PROVIDES DISEASE AND TREATMENT DATA ON CHILDREN WITH A VARIETY OF RHEUMATIC DISEASES. 95048 316307 ANNUAL MEETING: PROVIDES MANY OPPORTUNITIES TO DEVELOP AND REFINE SCIENTIFIC APPROACHES TO QUESTIONS IN CLINICAL AND TRANSLATIONAL RESEARCH, WHILE NETWORKING WITH COLLEAGUES. THE MEETING OFFERS A UNIQUE, INTERACTIVE FORMAT WITH SESSIONS THAT ENCOURAGE ACTIVE PARTICIPATION, INCLUDING BRAINSTORMING AND CONTRIBUTING TO NEW RESEARCH INITIATIVES AND IDEAS. 2002352 2002352 GRANT SUPPORT TO OTHERS: CARRA OFFERS MEMBERS VARIOUS FUNDING AND INTERNSHIP OPPORTUNITIES TO FURTHER RESEARCH THAT LEVERAGES THE CARRA NETWORK AND POSITIVELY IMPACTS THE PEDIATRIC RHEUMATOLOGY SCIENTIFIC COMMUNITY AND ADVANCES THE CARRA MISSION. OTHER PROGRAM SERVICES: INFORMATICS/PROGRAMING, LEADERSHIP SERVICE ASSOCIATED WITH FURTHERING THE MISSION AND ACR MEETING EXPENSES. 9903942 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 1 1 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 15 0 1 0 0 0 0 0 0 0 0 0 0 0 X 11 7 0 1 0 0 1 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 CA X CARRA-STEPHEN WITTE 2027721028 1050 CONNECTICUT AVENUE NW STE 500 WASHINGTON DC 20036 EMILY VON SCHEVEN MD MAS PAST PRESIDENT 10.00 X X 76479 0 0 CHRISTY SANDBORG MD CHAIR-SECRETARTY 3.00 X X 0 0 0 ROBERT COLBERT MD PHD PRESIDENT 10.00 X X 50000 0 0 CAROL WALLACE MD DIRECTOR 1.00 X 0 0 0 HARRY SAAL PHD DIRECTOR 1.00 X 0 0 0 STACY ARDOIN MD VICE PRESIDENT 10.00 X X 68220 0 0 JAY MEHTA MD MS TREASURER 5.00 X X 32103 0 0 LEIGH WHITE JD DIRECTOR 1.00 X 0 0 0 DANIEL SOLOMON MD PHD DIRECTOR 1.00 X 0 0 0 JOHN SUNDY MD PHD DIRECTOR 1.00 X 0 0 0 ROBERT FUHLBRIGGE MD PHD DIRECTOR 5.00 X 34020 0 0 260822 0 0 0 0 0 0 DUKE CLINICAL RESEARCH INSTITUTE 2400 PRATT ST DURHAM NC 27705 CARRA REGISTRY MANAGEMENT 6617845 HARVARD MEDICAL SCHOOL 300 LONGWOOD AVE BOSTON MA 02115 INFORMATICS SUPPORT FOR REGISTRY 555468 EXECUTIVE DIRECTOR INC 555 E WELLS ST STE 1100 MILWAUKEE WI 53202 MANAGEMENT SERVICES 378403 BOSTON CHILDREN'S HOSPITAL 300 LONGWOOD AVE BOSTON MA 02115 INFORMATICS SUPPORT FOR REGISTRY 290124 CONSTRAT SERVICES 150 WEST 55TH STREET NEW YORK NY 10019 MANAGEMENT SERVICES 289049 6 648501 648501 RESEARCH STUDIES & COLLAB 541900 9696363 9696363 MEMBERSHIP DUES 541900 51115 51115 9747478 165869 165869 10561848 9747478 0 165869 X 2002352 2002352 260822 260822 657603 343202 314401 94318 43386 50932 47732 21957 25775 378403 283802 94601 28464 28464 1561703 1047603 514100 6580 6580 5837 5837 157854 28731 129123 2994 1497 1497 95048 95048 7250 7250 33949 33949 REGISTRY OPERATIONS 5466804 5466804 SUBSTUDIES RESEARCH PRO 249997 249997 MANUSCRIPTS 54267 54267 MEMBERSHIP RECRUITMENT 21098 21098 11645 4474 7171 11144720 9903942 1240778 0 5149688 563474 11025195 11191064 2548898 5176447 30467 27724 1060 115209 18755308 17073918 2700890 1005549 365747 1249062 1714118 1427626 4780755 3682237 X 13974553 13376681 15000 13974553 13391681 18755308 17073918 -582872 0 X 0 1 X 1 0 X 6025669 7209074 3005647 205868 648500 17094758 6025669 7209074 3005647 205868 648500 17094758 17094758 19852 167009 46432 1422 165869 400584 46030 10269 65475 29753 151527 17646869 26221393 0.96870 0.98580 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: GRANT SUPPORT REFUNDS - 2018 AMOUNT: $ 46,030. 2019 AMOUNT: $ 4,693. 2020 AMOUNT: $ 48,875. 2021 AMOUNT: $ 29,346. REBATES/COMMISSIONS - 2019 AMOUNT: $ 5,576. 2020 AMOUNT: $ 900. 2021 AMOUNT: $ 407. IRS REFUNDS - 2020 AMOUNT: $ 15,700. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 X 10561848 0 10561848 0 10561848 11144720 0 11144720 0 11144720 PART X, LINE 2: THE ORGANIZATION IS EXEMPT FROM INCOME TAX UNDER SECTION 501(C)(3) OF INTERNAL REVENUE CODE AND IS CLASSIFIED AS OTHER THAN A PRIVATE FOUNDATION. MANAGEMENT HAS REVIEWED ALL TAX POSITIONS RECOGNIZED IN PREVIOUSLY FILED TAX RETURNS AND THOSE EXPECTED TO BE TAKEN IN FUTURE TAX RETURNS. AS OF DECEMBER 31, 2022, THE ORGANIZATION HAD NO AMOUNTS RELATED TO UNRECOGNIZED INCOME TAX BENEFITS AND NO AMOUNTS RELATED TO ACCRUED INTEREST AND PENALTIES. THE ORGANIZATION DOES NOT ANTICIPATE ANY SIGNIFICANT CHANGES TO UNRECOGNIZED INCOME TAX BENEFITS OVER THE NEXT YEAR. 1 0 0 0 0 0 0 0 0 0 NORTH AMERICA (CANADA) LADA 97406 WIRE 0 UNITED KINGDOM HEALTH EQUITY 81970 WIRE 0 CANADA SMALL GRANT 49500 WIRE 0 0 0 0 0 0 0 PART I, LINE 2: CARRA HAS A GRANTS REVIEW COMMITTEE THAT OVERSEES THE FUNDING OF GRANTS. GRANT RECIPIENTS MUST GO THROUGH A GRANT REVIEW PROCESS, WHICH INCLUDES A FINAL GRANT REPORT DUE WITHIN 30 DAYS OF THE END OF THE PROJECT PERIOD. PART III ACCOUNTING METHOD: 1 DUKE MEDICAL CENTER 10 DUKE MEDICINE CIR DURHAM NC 27710 560532129 501(C)(3) 54575 0 FMV LARGE GRANT REGENTS OF THE UNIVERSITY OF MINNESOTA 200 OAK STREET SE MINNEAPOLIS MN 55455 416007513 501(C)(3) 14982 0 FMV SMALL GRANT UNIVERSITY OF UTAH 201 PRESIDENTS CIR SALT LAKE CITY UT 84112 876000525 501(C)(3) 49948 0 FMV LARGE GRANT BOSTON CHILDREN'S HOSPITAL 300 LONGWOOD AVE BOSTON MA 02115 042774441 501(C)(3) 149830 0 FMV HEALTH EQUITY GRANT CINCINNATI CHILDRENS HOSPITAL MEDICAL CENTER 3333 BURNET AVE CINCINNATI OH 45229 316026285 501(C)(3) 26460 0 FMV LADA GRANT THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3401 CIVIC CENTER BLVD PHILADELPHIA PA 19104 231352166 501(C)(3) 100000 0 FMV LARGE GRANT HACKENSACK UMC RESEARCH 221487576 501(C)(3) 10000 0 FMV DATA ANALYSIS GRANT NEMOURS FOUNDATION 590634433 501(C)(3) 50000 0 FMV LARGE GRANT UNIVERSITY OF MICHIGANCS MOTT CHILDREN'S HOSPITAL 386006309 501(C)(3) 100000 0 FMV LARGE GRANT COHEN CHILDREN'S MEDICAL CENTER OF NEW YORK-FEINSTEIN 112673595 501(C)(3) 25000 0 FMV FELLOWS GRANT UNIVERSITY OF ALABAMA AT BIRMINGHAM 636005396 501(C)(3) 150000 0 FMV HEALTH EQUITY GRANT INDIANA UNIVERSITY 356001673 501(C)(3) 48399 0 FMV SMALL GRANT NATIONWIDE CHILDREN'S HOSPITAL 316056230 501(C)(3) 49995 0 FMV SMALL GRANT UNIVERSITY OF PITTSBURGH 250965591 501(C)(3) 50000 0 FMV SMALL GRANT STONY BROOK CHILDREN'S HOSPITAL 274504501 501(C)(3) 10180 0 FMV PUBLICATION SUPPORT GRANT PART I, LINE 2: CARRA HAS A GRANTS REVIEW COMMITTEE THAT OVERSEES THE FUNDING OF GRANTS. GRANT RECIPIENTS MUST GO THROUGH A GRANT REVIEW PROCESS, WHICH INCLUDES A FINAL GRANT REPORT DUE WITHIN 30 DAYS OF THE END OF THE PROJECT PERIOD. FORM 990, PART VI, SECTION A, LINE 3 LINE 3 EXPLANATION - CARRA CONTRACTS WITH EXECUTIVE DIRECTOR INC. (A FOR-PROFIT MANAGEMENT COMPANY) TO PROVIDE OFFICE FACILITIES, MANAGEMENT, RECORD KEEPING, ACCOUNTING, STORAGE, OTHER SIGNIFICANT SERVICES, PLUS RELATED OVERHEAD COSTS. THE ORGANIZATION ENDED THE CONTRACTUAL RELATIONSHIP IN MARCH 2022. FORM 990, PART VI, SECTION A, LINE 6 LINE 6 EXPLANATION - THE ORGANIZATION HAS MEMBERS. FORM 990, PART VI, SECTION B, LINE 11B LINE 11B EXPLANATION - PRIOR TO FILING, FORM 990 WILL BE REVIEWED BY MANAGEMENT AND THEN DISTRIBUTED TO THE FULL BOARD AND FINANCE COMMITTEE FOR REVIEW. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST POLICY IS MONITORED BY THE ETHICS COMMITTEE AND REVIEWED AND SIGNED AT THE BEGINNING OF EACH FISCAL YEAR BY ALL STAFF AND BOARD MEMBERS WITH SIGNIFICANT DECISION MAKING AUTHORITY. IT IS EACH SIGNATOR'S OBLIGATION TO DISCLOSE ANY POTENTIAL CONFLICT AS SOON AS IT IS KNOWN, OR REASONABLY SHOULD BE KNOWN. FORM 990, PART VI, SECTION B, LINE 15 THE BOARD OF DIRECTORS SHALL REVIEW ANY COMPENSATION PACKAGES AND SHALL APPROVE SUCH COMPENSATION ONLY AFTER DETERMINING THAT THE COMPENSATION IS REASONABLE. COMPENSATION IS DETERMINED USING INFORMATION ABOUT COMPENSATION PAID BY SIMILARLY SITUATED TAXABLE AND TAX-EXEMPT ORGANIZATIONS FOR SIMILAR SERVICES. SUCH INFORMATION MAY INCLUDE UP-TO-DATE COMPENSATION SURVEYS COMPILED BY INDEPENDENT FIRMS OR ACTUAL WRITTEN OFFERS FROM SIMILARLY SITUATED ORGANIZATIONS. APPROVALS OF ALL COMPENSATION MUST BE DOCUMENTED IN WRITING WITH THE DATES AND TERMS OF THE AGREEMENT, A RECORD OF ALL INDIVIDUALS WHO VOTED IN CONSIDERATION, ALONG WITH ALL INFORMATION AND THE INFORMATION'S SOURCE. FORM 990, PART VI, SECTION C, LINE 19 THE MOST RECENT FORM 990S (INCLUDING FINANCIAL INFORMATION), THE BYLAWS, ARTICLES OF INCORPORATION, FORM 1023 APPLICATION FOR EXEMPTION, AND CONFLICT OF INTEREST POLICY ARE PROVIDED TO THE PUBLIC UPON REQUEST FORM 990, PART IX, LINE 11G STEERING COMMITTEE CONTRACTS: PROGRAM SERVICE EXPENSES 368,474. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 368,474. INFORMATIC CONTRACTS: PROGRAM SERVICE EXPENSES 555,468. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 555,468. EXECUTIVE LEADERSHIP RESEARCH: PROGRAM SERVICE EXPENSES 37,979. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 37,979. OTHER PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 85,682. MANAGEMENT AND GENERAL EXPENSES 514,100. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 599,782.