2023-09-27T17:09:28-05:00 2023-01-31 133628255 CONDON O'MEARA MCGINTY & DONNELLY LLP ONE BATTERY PARK PLAZA 7TH FL NEW YORK NY 10004 990 2022-02-01 133616680 THE ALS ASSOCIATION GREATER NY CHAPTER ALSA 2126191400 42 BROADWAY 1724 NEW YORK NY 10004 KRISTEN COCOMAN PRESIDENT 2126191400 2023-09-26 1 KRISTEN COCOMAN 999009999 0 ALEXANDER LAZZARUOLO P01775353 2126617777 2 AAL1 IAL1 2022 2023-04-26 12:10:37Z KRISTEN COCOMAN 42 BROADWAY 1724 NEW YORK NY 10004 6695641 0 4119 X WWW.ALS-NY.ORG X 1990 NY DISCOVER TREATMENTS & A CURE FOR ALS, & SERVE, ADVOCATE FOR, & EMPOWER PEOPLE AFFECTED BY ALS. 17 17 30 150 0 0 6018465 5560313 0 0 186707 113503 -401881 -836097 5803291 4837719 65764 219221 0 0 2137253 2268454 0 0 492344 2565637 2705653 4768654 5193328 1034637 -355609 7108895 7505334 380725 1569729 6728170 5935605 X THE MISSION OF THE ALS ASSOCIATION GREATER NEW YORK CHAPTER (THE "ALS-GNY") IS TO DISCOVER TREATMENTS AND A CURE FOR ALS AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST. 0 0 3009180 219221 CARE SERVICES: THE ASSOCIATION PROVIDES A WIDE RANGE OF SERVICES FOR PEOPLE WITH ALS AND THEIR FAMILIES LIVING IN NEW YORK CITY, LONG ISLAND, WESTCHESTER, HUDSON VALLEY AND NORTHERN AND CENTRAL NEW JERSEY. THE ASSOCIATION SPONSORS TEN MULTIDISCIPLINARY CLINICS IN THE REGION, MAKES LOANS OF MEDICAL EQUIPMENT AND ASSISTIVE COMMUNICATION DEVICES, PROVIDES GRANTS TO PATIENTS TO ALLEVIATE SOME OF THE CONSIDERABLE FINANCIAL BURDEN OF THE DISEASE, HOLDS PATIENT AND CAREGIVER EDUCATIONAL SYMPOSIA AND MONTHLY SUPPORT GROUPS, CONDUCTS HOME VISITS, PROVIDES TRANSPORTATION TO QUARTERLY CLINIC APPOINTMENTS, AND OFFERS SOCIAL WORK AND REFERRAL SERVICES. 643181 RESEARCH: THE ALS ASSOCIATION DIRECTS THE MOST COMPREHENSIVE GLOBAL RESEARCH PROGRAM EVER ORGANIZED TO FIND A CURE FOR ALS. SINCE THE CHAPTER'S INCEPTION, WE HAVE FUNDED APPROXIMATELY $15.7 MILLION IN RESEARCH EFFORTS TO SUPPORT INNOVATIVE AND DIVERSE SCIENTIFIC RESEARCH STUDIES AND CLINICAL TRIALS WORLDWIDE. THE CHAPTER IS PARTICULARLY PROUD TO SUPPORT THE MILTON SAFENOWITZ POST-DOCTORAL FELLOWSHIP PROGRAM, WHICH ENCOURAGES AND FACILITATES PROMISING YOUNG SCIENTISTS TO FOCUS THEIR FUTURE WORK IN THE FIELD OF ALS RESEARCH. 349652 PUBLIC AWARENESS AND EDUCATION: THE ASSOCIATION WORKS TO PROMOTE AWARENESS TO AFFECTED FAMILIES TO HELP THEM UNDERSTAND ALL FACETS OF THE COMPLEX AND DEVASTATING DISEASE THAT IS ALS, AS WELL AS THE WORK OF THE ALS ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS, AND THE SCIENTIFIC COMMUNITY. THROUGH EXTERNAL RELATIONS, OUR WEBSITE AND SOCIAL MEDIA CHANNELS, THE ASSOCIATION CONTINUALLY RAISES AWARENESS ABOUT ALS AND THE SEARCH FOR A CURE. ON AVERAGE, 17,000 VIEWERS VISIT OUR WEBSITE EACH QUARTER TO ACCESS THIS VITAL SOURCE OF INFORMATION FOR THOSE BATTLING THE DISEASE AND LOOKING FOR INFORMATION ABOUT SERVICES AND THE LATEST NEWS ABOUT THE DISEASE. OUR SOCIAL MEDIA PLATFORMS, INCLUDING FACEBOOK, INSTAGRAM, YOUTUBE, TWITTER AND LINKEDIN REACH MORE THAN 13,000 FOLLOWERS. 228929 ADVOCACY: THE ALS ASSOCIATION IS THE LARGEST AND MOST INFLUENTIAL NATIONAL ORGANIZATION IN THE U.S. FOCUSED SOLELY ON ALS. OUR GOAL IS TO EDUCATE THE PUBLIC AS WELL AS POLICY MAKERS AT THE FEDERAL AND STATE LEVELS, AND TO DRIVE TOWARD SMART DECISIONS ABOUT ALS RELATED TO RESEARCH, TREATMENT AND ACCESS TO CARE. AT THE FEDERAL LEVEL, THE ASSOCIATION HAS BEEN INSTRUMENTAL IN SECURING ANNUAL FUNDING FOR THE DEPARTMENT OF DEFENSE'S ALS RESEARCH PROGRAM, THE NATIONAL ALS REGISTRY AT THE CENTERS FOR DISEASE CONTROL, AND THE NATIONAL INSTITUTES OF HEALTH ALS RESEARCH PROGRAM. AT THE STATE LEVEL, THE ALS ASSOCIATION GREATER NEW YORK CHAPTER CONTINUES TO BUILD RELATIONSHIPS WITH THE NEW YORK AND NEW JERSEY STATE LEGISLATURES TO SECURE GOVERNMENT FUNDING FOR LOCAL CARE SERVICES THAT DIRECTLY BENEFIT PEOPLE WITH ALS AND THEIR FAMILIES. 228929 4230942 1 1 0 1 0 0 0 0 0 1 1 0 0 1 1 0 1 0 0 0 0 0 0 0 1 0 0 0 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 13 0 1 30 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 17 17 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 NJ NY X X X THE ALS ASSOCIATION INC 2126191400 42 BROADWAY 1724 NEW YORK NY 10004 ALLEN J POPOWITZ ESQ CHAIRMAN 4.00 X X 0 0 0 LENNARD KATZ VICE CHAIRMAN 4.00 X X 0 0 0 W MARC LANE TREASURER 4.00 X X 0 0 0 NANCY MIRINGOFF SECRETARY 4.00 X X 0 0 0 ALICE CLAAR DIRECTOR 1.00 X 0 0 0 KEN DASHOW DIRECTOR 1.00 X 0 0 0 DAVID LUBARS DIRECTOR 1.00 X 0 0 0 MATTHEW PERLINE DIRECTOR 1.00 X 0 0 0 PETER ROSENBERGER DIRECTOR 1.00 X 0 0 0 DORINE GORDON DIRECTOR 1.00 X 0 0 0 ROBERT TUCHMAN DIRECTOR 1.00 X 0 0 0 LEE BRODSKY DIRECTOR 1.00 X 0 0 0 KEVIN M GLASSMAN MD DIRECTOR 1.00 X 0 0 0 ALAN LEVINE DIRECTOR 1.00 X 0 0 0 JOSHUA D RAND DIRECTOR 1.00 X 0 0 0 NIRALI SHAH ESQ DIRECTOR 1.00 X 0 0 0 ERIC BERNIKER DIRECTOR 1.00 X 0 0 0 KRISTEN COCOMAN PRESIDENT & CEO 40.00 X 221672 0 7099 REGINA ACKLEY VICE PRESIDENT & COO 40.00 X 187225 0 16043 VIVIAN BANKS DIRECTOR OF INDIVIDUAL AND 40.00 X 109675 0 13716 JORDANA NEWLER DIRECTOR, FUNDRAISING & EVENTS 40.00 X 109592 0 13714 BEN LIEMAN ASSISTIVE TECHNOLOGY SPECIALIST 40.00 X 104322 0 3578 DEBBIE SCHLOSSBERG CHIEF CARE SERVICES OFFICER 32.00 X 105431 0 3460 837917 0 57610 6 0 1 0 0 2820309 1031727 1708277 38166 5560313 98916 98916 589977 575390 14587 14587 14587 203400 2820309 1282532 -1079132 -1079132 EMPLOYEE RETENTION CRE 900099 243035 243035 243035 4837719 0 0 -722594 219221 219221 419859 325578 38488 55793 1453924 1127439 133281 193204 38978 30225 3573 5180 194073 150493 17791 25789 161620 125327 14816 21477 88840 88840 30750 30750 36350 36350 278727 137277 100972 40478 181 181 132 132 451674 278110 26183 147381 28770 27333 1437 13730 13730 PATIENT & CLINIC SUPPOR 1267587 1267587 RESEARCH 500000 500000 PUBLIC AWARENESS & EDUC 5870 5870 OTHER FUNDRAISING COST 3042 3042 5193328 4230942 470042 492344 872815 1112923 993965 853504 982953 503212 127394 88509 1387215 1338128 59857 49087 4043453 3540459 28458 1357640 7108895 7505334 135769 36410 244956 0 0 1533319 380725 1569729 X 6255553 5920391 472617 15214 6728170 5935605 7108895 7505334 -355609 -436956 0 X 0 1 X 1 0 X 5181719 5498195 4001185 6356940 5560313 26598352 5181719 5498195 4001185 6356940 5560313 26598352 26598352 181555 126506 120076 171121 98916 698174 338475 243035 581510 27878036 0.95410 0.96110 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED X 36350 36350 5156978 5193328 409666 102417 0 0 410104 348087 388433 409666 1556290 2334435 28950 34800 35393 36350 135493 102526 87022 97108 102417 389073 583610 4804323 753212 -326551 1530615 3700369 4740658 1132953 71743 1141031 4804323 4220638 789393 356512 625885 4740658 4549451 465604 467701 1262118 4220638 5190450 533118 -1617 1172500 4549451 0.99590 0.00410 0 0 25344 9045 16299 1336787 1313441 23346 25084 15642 9442 49087 RIGHT-OF-USE OPERATING LEASE 1329182 SECURITY DEPOSIT 28458 1357640 OPERATING LEASE LIABILITY 1533319 1533319 4400763 -436956 -436956 4837719 0 4837719 5193328 0 5193328 0 5193328 PART V, LINE 4: BOARD DESIGNATED FUNDS: THE CHALLENGE, RAMEY AND CAPITAL MANAGEMENT FUNDS AT VANGUARD ARE BOARD DESIGNATED ACCOUNTS. THE CHALLENGE FUND WAS CREATED AFTER 2014'S ICE BUCKET CHALLENGE WITH A SPEND-DOWN PLAN BETWEEN 5 AND 7 YEARS. THE RAMEY FUND WAS SET UP WITH A $1.6 MILLION BEQUEST AND WILL BE USED ENTIRELY FOR PATIENT SERVICES. THE CAPITAL MANAGEMENT FUND WAS SET UP WITH SOME OF THE CHAPTER'S EXCESS RESERVE FUNDS TO HELP THE CHAPTER TO BE ABLE TO TAKE ADVANTAGE OF IMPORTANT RESEARCH AND PATIENT SERVICES PROGRAM FUNDING OPPORTUNITIES WHEN THEY ARISE. TEMPORARILY RESTRICTED REVENUE REPRESENTS EXPENDABLE GIFTS AND GRANTS, WHICH ARE RESTRICTED BY THE DONOR OR ARE TO BE MADE AVAILABLE IN FUTURE PERIODS. AS THE RESTRICTIONS ARE SATISFIED, NET ASSETS WITH DONOR RESTRICTIONS WILL BE RECLASSIFIED TO NET ASSETS WITHOUT DONOR RESTRICTIONS AND REPORTED IN THE FINANCIAL STATEMENT AS NET ASSETS RELEASED FROM RESTRICTIONS. THE ALS-GNY'S POLICY IS TO RECORD, AS NET ASSETS WITHOUT DONOR RESTRICTIONS REVENUE, CONTRIBUTIONS WHEN DONOR-IMPOSED RESTRICTIONS ARE MET IN THE SAME YEAR THAT THE CONTRIBUTIONS ARE RECEIVED. WALK 1488777 1488777 616744 SPORTS DINNER 464958 413058 51900 352774 4 1069974 918474 151500 313014 3023709 2820309 203400 1282532 1282532 -1079132 1 IN-HOME CARE RESPITE GRANTS 88 149879 0 RAMP INSTALLATION GRANTS 14 69342 PART I, LINE 2: THE ALS-GNY RECEIVES FUNDS FROM DONORS TO PROVIDE GRANTS TO INDIVIDUALS TO ASSIST WITH HOME HEALTH AIDE AND OTHER IN-HOME CARE COSTS. THESE GRANTS ARE GIVEN AFTER INDIVIDUALS SUBMIT A WRITTEN APPLICATION, WHICH INCLUDES DOCUMENTATION OF PAYMENTS MADE TO HOME HEALTH AIDES OR RECEIPTS FOR OTHER IN-HOME CARE EXPENSES. THE CHIEF CARE SERVICES OFFICER AND HER TEAM EVALUATE APPLICATIONS BASED ON FAMILIES' FINANCIAL NEEDS. X 0 0 0 0 0 0 0 0 0 KRISTEN COCOMAN PRESIDENT & CEO 206672 0 15000 0 0 0 6650 0 449 0 228771 0 0 0 REGINA ACKLEY VICE PRESIDENT & COO 149725 0 37500 0 0 0 5617 0 10426 0 203268 0 0 0 X 1 20166 FMV X VARIOUS MEDICAL EQUIPMENT 3 18000 3RD PARTY APPRAISAL 0 1 0 FORM 990, PART VI, SECTION A, LINE 2 BOARD CHAIRMAN ALLEN J. POPOWITZ, ESQ. AND BOARD MEMBER JOSHUA RAND ARE BROTHERS-IN-LAW. FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 IS PREPARED BY THE ALS-GNY'S PUBLIC ACCOUNTANTS AND REVIEWED BY THE CHIEF FINANCIAL OFFICER. THE FORM 990 IS PROVIDED TO THE FULL BOARD PRIOR TO FILING WITH THE INTERNAL REVENUE SERVICE. FORM 990, PART VI, SECTION B, LINE 12C ON AN ANNUAL BASIS, ALL OFFICERS AND DIRECTORS, AS WELL AS KEY EMPLOYEES ARE REQUIRED TO REVIEW AND SIGN A CONFLICT OF INTEREST POLICY. THEY ARE REMINDED AT THAT TIME THAT THEY MUST NOTIFY THE ALS-GNY MANAGEMENT AT ANY TIME THROUGHOUT THE YEAR IF THEY FEEL THERE IS EVEN A QUESTION OF A CONFLICT OF INTEREST. FORM 990, PART VI, SECTION B, LINE 15 THE INDEPENDENT MEMBERS OF THE BOARD REVIEW AND APPROVE ALL COMPENSATION PACKAGES FOR OTHER OFFICERS AND KEY EMPLOYEES. BEFORE ANY PACKAGE IS OFFERED, SALARIES FOR SIMILARLY TITLED EMPLOYEES AT OTHER ORGANIZATIONS ARE RESEARCHED. FORM 990, PART VI, SECTION C, LINE 19 THE ALS-GNY MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST. THE ALS-GNY ALSO MAKES THE FINANCIAL STATEMENTS AND THE FORM 990 AVAILABLE VIA THE WEBSITE AT WWW.ALS-NY.ORG.